Topical ruxolitinib from Dr.King

I have a request for every Dr.King patient: could you inquire about topical ruxolitinib (so not topical tofacitinib/xeljanz) at your next consult? He had some great success with it (end of 2015) but everybody seems to get the topical xeljanz instead.

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Permalink Reply by 3ebdie on March 21, 2016 at 10:52am

Thanks hopeful2015. So this is another pharmacy than the one in Philadelphia: ChemistryRx who seem to compound topical tofacitinib/xeljanz for 300 dollar a tube (30mg)?

I tried to google on CT compounding pharmacy but no hits for me. Do you have more info on this pharmacy? Are you seeing Dr.Brett King by any chance? I would really like to visit him in June but I can't find a way on the internet to book a consult with him :(

Permalink Reply by Baldie on November 11, 2019 at 11:42pm

Unfortunately this is not true.  As any derm will tell you, once the hair follicle goes dormant for 5+ years, it is unlikely to ever produce hair again.   It is basically dead.  So DO NOT give up the fight, thinking science will deliver something a decade down the road.  Your son WILL NOT be able to benefit from it.  Fight it now for his future adult hair.  

Permalink Reply by Giovanna Villella on December 4, 2016 at 7:03pm
Why don't you try with lumigan? IT' is an eye drops, I use it only for my eyelashes and It's fantastic, now they are very long.It' s good for eyebrows too and with prescriptIon it's free, because the real use is for glaucoma.
Permalink Reply by marisa on March 17, 2016 at 5:06pm
Thank you so much! As per dr craiglow, she said this patient was a super responder. Not everyone reacts and responds the same. These topicals are still in the early stages and they are going to do more clinicals possibly with a different formulation. She didn't go into detail as what she meant by formulation
Permalink Reply by wclawvs on May 9, 2016 at 3:27pm

Hi Marisa, I just sent you a friend request. We are getting ready to take our 6 year old to Dr. Craiglow. It is quite a drive and I'm wondering if it's worth it.

Permalink Reply by Xeljanz2015 on March 18, 2016 at 11:55pm

I have asked him about it before. He said that he doesn't prescribe topical Ruxolitinib if you're already taking Xeljanz orally. 

The girl that had her eyebrows back from Ruxolitinib cream actually spent several thousands of dollars and crushed actual pills into a cream through a compound pharmacy.

I remember on my first consultation with him he talked about both drugs, but the Xeljanz was the one that he prescribes to his patients.

Permalink Reply by thanmikron on March 19, 2016 at 7:30am

Hi! I had AU when I was 8 and it reappeared as AA now at my 35, due to extreme stress. After trying cortisone for half a year, I decided to try topical Ruxolitinib 0.6% twice per day. It's been already almost a month but no hair has grown yet but I'll make sure I keep you guys posted re the progress. I'm still hesitant getting Ruxolitinib or X orally or even have cortizone simultneously with topical R. A lot to lose in terms of side effects and some of them might not be obvious now but be more like long-term.

Permalink Reply by Xeljanzmiracle on March 21, 2016 at 6:06am
Good morning Thanmikron. Do you think your AA is autoimmune or due to stress? How long were you AU as a child? Then ALL of your hair came back or only partially? You say you HAD to move to Greece from London, which would be extremely stressful. Was that because of your job? You can friend request me if you don't want to answer these questions publicly. Then you can send me a private message.
Permalink Reply by thanmikron on March 21, 2016 at 6:23am

Goodm morning! My AA is  autoimmune and was definitely trigerred last year due to increased stress. As a child I had AU for 2-3 years and all of hair came back. I had to move out of London because life there is too stressful.

Permalink Reply by dmaitz on August 24, 2016 at 9:11am

Im sorry, you all probably know this but I'm going to ask it anyway.  XeljanzMiracle, you are referring to Topical X and R as if it were able to be purchased.  I am aware there are several clinical trials underway but that Tofacitinib and Ruxolitinib have not yet been approved for the treatment of AA.  Am I mistaken, or will my doctor prescribe if requested.    

Permalink Reply by PA44totracon on October 26, 2016 at 10:03am
Hi everyone. Wanted to bump this thread and see if there were any updates on the topicals, info from doctors. I have an appointment with my Derm in a few weeks and wanted to discuss topical Rux with him. I would like to bring in the Yale study so any links to that would be appreciated. Only things I can find are non scientific articles and paywall protected links. Any help would be much appreciated.
Permalink Reply by LIU CHUNXIU on December 13, 2016 at 2:31am

my 17 year old daughter has AA and vitiligo, who knows the results for the clinical trails for AA and vitiligo? or who attend it? i am in China, where can i get the topical Ruxo> i know it is availabe in US.

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