Replies to This Discussion

Permalink Reply by Donna Wingate on May 14, 2010 at 4:05pm

Hi Nathan, well im from the uk also surely we arent the only ones??????? and i'd say having this and the nhs are pretty crap, mind you is there really that much that can be done?

Donna x

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Permalink Reply by Daniela on October 6, 2010 at 2:57pm

hi, im from the UK too. ive had some pretty bad experiences with the NHS-not just woth alopecia. fist:i had to wait two months into my alopecia to be seen by a dermatologist-by then id already lost the majority of my hair so when i DID see him, he said "oh well, that's alopecia." didn't think i knew that already?
2nd: when i had apendicitis, they told me it was a stomach bug so i went home. by the time i was dying of pain, the doctor said "well, maybe its apendicitis, well operate just incase." turned out i needed it removed becasue it had twisted backwards or whatever.
so basically, the doctors in england are stupid and only care about getting paid. well, thats what it seems like to me lol.
Dani

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Permalink Reply by Rose Marie' on November 22, 2010 at 8:17pm

Hi Welshcakes

Thats really interesting could you post here who people should get in touch with to help.

thanks

Rosy

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Permalink Reply by Rose Marie' on February 7, 2011 at 10:53pm

Hi Welshcakes

Is there anyway that I may be able to help you with this process. I'm happy to do anything I can.

Rosy

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Permalink Reply by shirley carole douglas on October 16, 2010 at 9:42pm

if you are looking for a more uk based website then you can go to alopeciachat.com
its a social networking site just like this website but made and based in the uk. currently the website doesnt have many members as it was made last month but has had MANY improvements over this month so i would love for more people in the same part of the world as myself to be in contact with me and others through alopeciachat

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Permalink Reply by Jaye-London on October 18, 2010 at 3:56am

There's also Alopecia UK (www.alopeciaonline.org.uk) but it's not as active as AW.

It is frustrating that the NHS doesn't offer much (if any) help with alopecia, but then again not even my private health insurance covers it (treatment, tests or wigs). Not right. Not fair. I could go on about how crazy it is that the NHS will treat people for things they've brought on themselves because they've not taken care of (or even abused) their own bodies or are so brainwashed by images in the media that they think they have a right to look a certain way. But life isn't fair, is it.

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Permalink Reply by Rose Marie' on November 18, 2010 at 2:36pm

Hi Guys

You know I hate that people aren't helped financially with this condition. (I don't mean just for hairpieces). I feel counselling, doctors appointments etc. etc. can become grippling financially for many people dealing with this condition. I've often thought that sites like this would be a good place for all countries to band together to make a real difference with the governments around the world. I guess it is just a quiet hope of mine that one day everyone throughout the world dealing with this condition will work together putting their different agendas and egos aside to make a concerted effort to get the message out that this condition is difficult emotionally and financially.

This site is an extremely well run place with fabulous people at it's helm, maybe a good place to network and get things organised around the world, so people can get the help they need??

Just a thought....

Rosy

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Permalink Reply by velvet on April 30, 2011 at 10:54am

hey is anyone from around stratford upon avon :) i am 16 and would love to meet new people x

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