Will my fiance pass his AU to our kids?

Hii Guys ..
first of all I'm not a sufferer of alopecia but I'd like to tell u guys that I really love U all I love ur bald heads , because simply my fiance is one of you ..
he's a sufferer of alopecia Universalis , to tell u the truth when I first saw him I didn't realize he had any problem , I thought he just has a bald head , by time I realised his problem , I searched on the internet to understand this condition ,and it was enough for me to know that this is an autoimmune condition that the immunity system attack the hair follicle and the regrowth is possible at anytime , and its a "genetic disease" .. I didn't care much abt this word "genetic" then,
now we're engaged for 8 months ,as I told u I don't see something bad with his baldness, I totally accept his appearance , however we never talked about this Issue ,he didn't tell me about the disease since we met all he've said that he lost his hair since he was 18 , I didn't ask ..and he didn't tell anything more ..
Unfortunately when I was googling the disease one more time in the last few weeks , I was shocked to read that the condition is hereditary , it was a big shock to me I totally understand and accept his suffering but I don't want our children suffer too .. I'm so sorry guys maybe I'm so rude
please guys I need to know is this true or not ?what did ur dermatologists tell u concerning this issue ? to what extent does the disease pass to children ?if so will it pass to boys or girls ? do u know real cases that the father passed the AU to his kids ? if it happens will they experience it from childhood or after then ? by the way ,he has no family history except from normal pattern alopecia of his father , ,

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Permalink Reply by KeTa on September 13, 2018 at 9:14am

My mum had Aolpecia in her teens. Just small patches and it eventually grew back she said.  Me, if there's a "genetic" thing in my family, they seem to attach themselves to me like I'm a magnet. I got alopecia around the age of 25 and I'm now 44 and still have it.

As others have said, there are worse things in life than alopecia that your kids could develop. My acceptance of alopecia came when I was sent to the hematologist for an unrelated matter (something which turned out to be nothing).  During that visit I caught sight of 3 kids behind a glass screen, all bald, all receiving chemo. That put things firmly in perspective.  Here I was self destructing over a benign hair loss condition and there was these 3 kids laughing and making the best out of a very bad situation. All 3 of those kids would have swap their condition for my condition in a heartbeat as would their parents.

Permalink Reply by SabineTawni on September 14, 2018 at 10:26am

There is no comparison between hair loss from cancer treatment and hair loss from alopecia areata (especially AU).  Of course, I am very happy that I don't suffer from cancer and feel very badly for anyone who does.  However, since the issue is hair loss here, again I fail to see the connection.  Chemo patients have their hair grow back after treatment.  Our hair loss is long-term and sometimes permanent.  In the final analysis, things are not worse than they are, and they are not better than they are.  They are simply WHAT they are, and that is what we have to deal with.  I cannot use other people's misfortunes to feel better about myself and my situation.  Just my opinion.  

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