Xeljanz- Update after three months

I have just completed my third month taking Xeljanz. I am on 5mg 2x/day. I have had very promising results to date. Prior to the trial I had about 85-90% hairloss on my scalp, no eyebrows and no eyelashes. To date I now have no bald patches, both eyebrows are filling in nicely and I have eyelashes again. None are as full as before, but very encouraged. No side effects to report, all blood work has been fine. Picture is attached and I wish everyone the best on your own journey.

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Permalink Reply by elgoog on May 17, 2015 at 11:40am

That is awesome Chapstick. Very excited for you.

Permalink Reply by Tamer on May 17, 2015 at 1:47pm
Absolutely amazing.
Permalink Reply by Seahawks Dad on May 19, 2015 at 4:53pm

Thank you for the fantastic update. My 16 year old daughter has been on weekly methotrexate shots for the last 6-7 months with limited "regrowth" I'm exchanging emails with Dr. Brett King to discuss stopping the methotrexate shots and switch to the xeljanz treatment. Have you had any side effects? What is the treatment plan once you get to a place where you are happy with the growth...reduce treatment or stop completely? Most dermatologist want to wait until the clinical trials are completed but that's still another year or two away at the earliest. Thanks for everyone's thoughts.

Permalink Reply by Jckah on May 19, 2015 at 7:14pm
What has Dr. king said about stopping other treatments and switching to Xeljanz? Like how long do you have to be off the shots before you can use Xeljanz? My Dr. is currently working with my insurance company to get me covered but has me on prednisone and cortisone in the mean time.
Permalink Reply by Seahawks Dad on May 19, 2015 at 7:29pm

Thanks for the reply...we haven't gotten that far in the conversation. My daughter is being treated my a dermatologist from Children's Hospital in Seattle. We aren't seeing the results and I reached out to Dr. King who has been fantastic to deal with.

I'm curious how the "hand-off" would work getting off methotrexate and onto Xeljanz. What has your experience been? Thanks...

Permalink Reply by AU1989 on June 2, 2015 at 8:10am

SD- Has Dr King mentioned how frequently you'd have to visit his office? I ask because we are both far away from Yale but I heard that his patients normally have monthly appointments.   BTW- I am on Methotrexate and prednilsone currently.  I go to Yale in about 10 days and  I'll let you know what he suggests.

Permalink Reply by Nickibee on May 25, 2015 at 9:43pm
This is amazing and gives me hope :) I just started xeljanz 1 week ago. I have had AA for about 14 years now. It has been live able with extensions for about 11 years and I even had a full remission for about 1 year. But the last 2.5 years I went from AA to complete AT with spastic loss of body hair. Not all but some. Excited to see if this works for me as well as it did for you. Praying for us all!!
Permalink Reply by Chapstick on June 1, 2015 at 10:53pm
Sending prayers!
Permalink Reply by Giusep on May 26, 2015 at 7:47am
Wow Chapstick I am so happy for you. Thanks for posting that great picture. Please keep us all posted on what your next steps are.
Permalink Reply by Chapstick on June 1, 2015 at 10:54pm
Thank you! Will keep you posted for sure.
Permalink Reply by katiegirl on June 1, 2015 at 7:59pm
Hi chapstick. Very happy to hear and see your results so far. I was just prescribed xeljanz and took my first pill tonight. Starting on 5mg 2x day. Just a question- I do have some fine white hairs (very few I can count them) that started sprouting prior to xeljanz. Did your hair grow in white and than eventually turn color? do you know if that's how the process typically is?
Permalink Reply by Chapstick on June 1, 2015 at 10:52pm
when it started to come in the hairs were very blond and fuzzy and then turned darker. Best of luck, please keep me posted! Be patient and don't stress!

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