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Greetings from the States. I'm a newbie and still spending tons of time trying to figure out what is going on and how I can help myself. Because as all of you ladies know, medical science really does not offer us much hope. This site and you ladies have kept me feeling halfway sane. I've been lurking and learning so much and feeling less alone.
I was diagnosed with LPP last month as a result of a biopsy and the Nurse Practitioner who saw me totally shut me down before I could ask/suggest that I present as a classic case of FFA and what did she think about any possible hormonal connection? There was an intern making rounds with her that day and possibly she didn't want to appear undermined or questioned as to diagnosis in any way(?)
I'm getting a copy of my biopsy and going to a different derm later this month for a second opinion regarding treatment (the first derm suggested treatment for classic LPP: Plaquenil, clobetasol propionate, cortisone shots to the scalp).
I want a second opinion b/c most of what I'm reading suggests that an anti androgen makes more sense as first line treatment for women with FFA, specifically Propecia and Avodart. I've seen a few discussions on the forum, pro and con and would appreciate any updates.
I also wondered if anyone is taking natural DHT blockers in pill or food form or using anti androgen/DHT inhibitor/blockers in topical form on their scalp? Couldn't the inflammatory action that is destroying our hair follicles be related to sensitivity to testosterone/DHT since we no longer have the amount of estrogen/progesterone we used to have that possibly protected our hair follicles?
Any thoughts, ideas, suggestions, warnings, whatever welcomed!
Thanks!
Linda
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I got dx about a month ago with alopecia areata ...
I had both ovaries removed april 15th ..Im 30,
after that is when I noticed the patchy hair loss I went on prempro b4 I could get to the derm thinking thats the problem,
but it didn't help and 2 derms said it was alopecia areata..
I have chosen not to do hormores for as long as I can since I have stage 5 endomitriosis .
but good luck to yu<3
Thanks, Missellewoods, sorry to hear about your surgery and hope you are on the mend.
I had an area of alopecia areata on the back of my scalp approx. 10 years ago that did clear up after using a steroid cream. But now I honestly think that was just a little preview of things to come and the start of hormonal skin and hair issues for me since it occurred at the time I was completing menopause.
I understand your fear of using hormones, especially until your endomitriosis issues are cleared up. Hopefully your Gyn (or endocrinologist?) can help you after that in achieving hormonal balance via bioidentical or some type of safer hormone treatments. Hormones affect so much more than just our reproductive organs and you are so young and have a long life ahead of you!
Best of luck to you also.
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