Alopecia World
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You have to understand a person's point of view
Here I am, 28 years old, first AA in 2002 when I went out from the hospital after a month of recover for other health problems... From AA to AU in the 2007 completely in a month... I lived alone so I had to face with it by myself and I decided to shave my head cause I was so bored by trying to hide something that was clearly visible.
After these years I feel like I accepted it in a way or another... I don't say it was easy, I don't say it's now. But maybe cause I'm a man, maybe cause I felt people not so embarassed if they understand you're a good person and at the end they don't watch it anymore.. A thing that helped me was surely a good eye glasses we all know why.
By the way... Lately I thought about a guy that there was in my high school ten years ago and more, that clearly had AU. I remember that, not having it in those far days, I was someway "scared" by it and we watched it as something to not completely trust about, we didn't use to talk him a lot. Isn't it strange? I remember my point of view as a stupid high school guy and after some years I would have got the same problem... Jeez lately I feel like many things that happened in our past are going to have a "reason", I feel like many things is moving like a puzzle..
After these years I feel like I accepted it in a way or another... I don't say it was easy, I don't say it's now. But maybe cause I'm a man, maybe cause I felt people not so embarassed if they understand you're a good person and at the end they don't watch it anymore.. A thing that helped me was surely a good eye glasses we all know why.
By the way... Lately I thought about a guy that there was in my high school ten years ago and more, that clearly had AU. I remember that, not having it in those far days, I was someway "scared" by it and we watched it as something to not completely trust about, we didn't use to talk him a lot. Isn't it strange? I remember my point of view as a stupid high school guy and after some years I would have got the same problem... Jeez lately I feel like many things that happened in our past are going to have a "reason", I feel like many things is moving like a puzzle..
Replies to This Discussion
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Permalink Reply by Moni on
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When my daughter was bald, we would get the stares(well she did but I was with her)and I noticed the "whispers" being shared. I hated that. I would just go at it with myself. Should I talk some shit now or hold it till my kids go away and can't see mom getting crazy. I hated when I'd walk away from the situation because I didn't let them have it. How rude! They could've at least smiled at my girl. She didn't know what was going on but I did. It hurt me. Their rudeness or their curiosity. Whatever. Then there were those who smiled, who told me how beautiful she was, who told me to keep my head up. I realized either way, it bothered me. Not like I was trying to hide her but that that we were "sticking out".
I'd stare at her and just kept thinking to myself, "She's so beautiful. Look at those big lips, look at her beautiful nose. Those eyes. Her funny character. How could people see something different?"
I was never a vain person. I hated those who made fun of others. But the thing that I do now that I didn't do before is avoid looking at people with clear disabilities. Now I stare at them and smile. I love to do that. Most times they don't smile back but that's o'k.
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Permalink Reply by Tallgirl on
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Why not pack a bunch of print-outs that are informative and positive about alopecia to quietly hand out to the most educated, sincere-looking person in each of those groups as you walk away? They will put heads down to look at it, and you will both be gone by then. And, smile.
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