Replies to This Discussion

Permalink Reply by Christine on June 9, 2008 at 8:29pm

I have not had any treatments for over 15 years. I am hoping for a cure so others do not have to suffer as we have.

Permalink Reply by Carol on June 10, 2008 at 9:29am

I'm just wondering if there is anything you are doing to help find a cure? There is a registry you can join that will take some blood samples and use them for research. They study genetics and immunology mostly but they are making a break through in stem cell research which will hopefully help a lot. Scientists can grow human ears and human hair on a mouse's back too - some pretty freaky looking mice I'm sure! It's only a matter of time (unless, of course, you view alopecia as I do sometimes and see us as the future of evolution at which point everyone will lose their hair). Either way is good!

Permalink Reply by Christine on June 15, 2008 at 8:54pm

I didn't know about the registry until I joined Alopecia World. I will ask my doctor about it when I next see him. I have studied alot about natural health and healing. I feel that there can be a cure, we just have to find it. I have experimented with herbs and essential oils in the past and will be starting again soon. So in answer to your question, I am doing something, don't know if it will work, but I will never stop trying.

Permalink Reply by kastababy on June 11, 2008 at 11:17pm

My answer to that is an emphatic HELL NO!!

Why should I get my hopes up for something I know is not going to work, and spend money that could go in my gas tank (given the price gouging we go through to keep our cars on the road)?

I've learned a long time ago that this condition is going to either go into remission or not regardless of whether or not I take a treatment, so I would rather let nature take its course!!!

Permalink Reply by Carol on June 12, 2008 at 1:14pm

I can see eye to eye with you on this one! I haven't gone for treatments since I was 12. I'm just wondering YoKasta, did you get any regrowth during the time when you weren't on any meds? Every time I shave my head I seem to find another patch of hair. I know everyone's course is different but I'm just wondering what others with regrowth have seen. Not that I'd start taking meds or anything, it's obviously trying to work something out on its own, I'm just curious.

Permalink Reply by RENEE on June 12, 2008 at 10:34am

I have not had any treatment since I was 9 I do not see any new advances that would cause me to go back in search of treatment at this point in my life. I did register last year in a research study, but have not heard back anything from them.

Permalink Reply by Trina on June 26, 2008 at 9:03am

No,

I have not had treatments in at least 10 years as I have AU. If I would have had AA then I may have taken the time to do something. At this point the only thing that did work was prednisone and i was huge and as soon as the meds stopped so did the hair... But I do not knock anyone for doing what makes them happy..

Permalink Reply by Lori D. on June 26, 2008 at 12:24pm

My AA started when I was 6. At the time I only saw my pediatrician; even when it went to AU, we just took his word. A few years later, after we realized that his theory that it would grow back was not happening, we went to a hospital in Boston. Nothing much happened. No treatment at all. When I was in my thirties, I went to a dermatologist who did a biopsy, and blood tests..and tried the steroid shots. Personally, I believe that the sporadic and unpredictable growth that I've had, had more to do with my emotional health during different periods of my life. Currently I have facial hair, body hair, (minus the legs) and very thin, sparse growth on my scalp. Funnily enough, just recently, I've had growth on the top of my scalp which is very new for me.

Permalink Reply by Imbi on July 6, 2008 at 11:30am

Hi nice community!
I have had alopecia since I was 14. First time I shaved my hair I was 18 then with a treatment I got my hair back for a year and since then I have been bald. I stoped seeing my doctor a year after that and I have to say I felt good not taking any medicine because I got eating problems and lost weight. But last year after a summer I notesed that I have 5 small black spots on my head I didn´t care about it much but this winter I had problems with my skin and after we talked with my doctor we are now trying to see how my skin is acting to sun so from this summer I´m seeing my doctor again. I should say I´m AU but I can´t because all over my body there are spots with hair- on my legs, stomack, hands, my eye brows and eye lashes and right now my head is covered with small white hair plus with small black spot.
But I know I will stop taking medicine if it makes me sick as it did with when I was a teenager.

Permalink Reply by willow on July 8, 2008 at 11:38am

I have not had treatments since 89. But, a few weeks ago, I was attending a dental appointment. My dentist is from Romania, a wonderful gentleman, and excellent doctor. He was telling me, there is a cure for alopecia. I said, not for people like me that have had it for so many years. He was saying that medical achievements in Europe is so much more advance than here, which I would highly agree. He said he'd check it out for me, as he's in Romania this month. I'm curious what he comes back to me with. Maybe I'll have something to share with all of you. In the meantime, just stay bald and beautiful. Blessings

Permalink Reply by Gabriela on September 23, 2008 at 6:08pm

I developed AA at the age of 9. My mother used some herbal ointment and it worked. I did not get it again until the age of 19; my dermatologist gave me steroid (i think) shots directly to the scalp. It worked great! I kept getting small patches (quarter sized) and then about 4 years ago lost 50% of my hair -- I was devastated!

My father-in-law recommended an accupuncturist, who also did the shots but with herbal meds for a year and it only worked on some places (the small quarter sized patches). After that, which was march of this year, I went back to my dermatologist and steroid shots. The huge bald patch is gone, but I still have two more patches that refuse to get covered! LOL.

I don't live in the states, so there is on research I can join, too bad. I wish I could help.

Permalink Reply by Stephanie on September 25, 2008 at 2:55pm

My grandparents took me to doctors all through college, and I did topical steroids and extra strength Rogaine for men. And it worked. My hair would come back for about a year and then fall out again. But when I graduated college and got a full-time job, I made the decision to stop treatment.

It just seemed like I'd spend so much time in waiting rooms, pharmacies, driving to specialists because, of course, none of them live near me. Anyway, I realized this is something I'll have my whole life, and I can't expect my grandparents to pay for all my medicine and doctor's appointments. They would have, and they told me they would. But I just made the decision to cope with it.

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