Comment

Comment by Ebasha on October 28, 2009 at 5:03am

Hi guys, I have had alopecia (FPB) ever since I can remember. The problem was the doctors in my country did not know it, I think they did not know the FPB. I have suffered for years and years without knowing what was going on, why was I losing my hair and why was I not responding to treatment, when I was young, I had beautiful long black hair, but it was falling down and then suddenly I started to have thin hair on top of my head. I tell you, all of you are lucky not to be living in a third world country ... no one had compassion for the "bold" girl, and the comments I heard and the looks I got, slowly melted me from inside.
I never had a boyfriend growing up and I still think twice before I enter a friendship.
But now, I have grown stronger and I learnt to deal with my problem, and thank God for it even.
So how have you been all doing?

Comment by Kira on September 28, 2009 at 1:09am

Hi all,

I started with AA when I was 7ish maybe younger and pretty much had to deal with that up until 5 years ago when it upped to AU.

Comment by Sabina on August 23, 2009 at 9:43pm

Hi everybody, I was wanted to respond to progression, I see that many folks started with AA? When I was 15 ( now 40) all my hair fell out, I started with AU, but in years since I have regrown eylashes and fuzz on my head. Not enough fuzz to be any good. Has anyone else had the same experience?? My 6 year old son also has alopecia, with the same progress that I have shown.

Comment by elaine on August 20, 2009 at 4:56am

hi louise, larisa

Firstly welcome to the family. Louise I've had AA since I was 13 and am now 42. As with the rest of us we have all been through the ups and downs with this horrible thing.

Larisa I have to admit I hve had AT and AU in the past 9yrs after a major operation. Before that I just had AA. Now I've settled with AT but at least I don't hve to worry about shaving my legs lol.

Comment by Dame on June 21, 2009 at 10:43am

I have had AA since I was 4... I was wondering how many adults on here who grew up with AA had their alopecia progress into AT or AU. I am afraid mine might progress...

Comment by Sally Wilson on March 9, 2009 at 11:15am

Elaine,

I'm active, though retired. I walk 2 miles a day, when the weather allows and go to a regular exercise group three times a week. As to my age, I remember rationing during World War II.

Sally

Comment by elaine on March 8, 2009 at 2:13pm

how old are you Sally? I have the hospital a week Monday but I doubt they will have any different news from the last visit I had. I found 3 hairs on the top of my head this morning when i was putting on my make up but hey been there before lol. don't think I would know what to do with hair now anyway I'm too used to picking my head up off the floor, giving it a shake and putting it on lol.

Comment by Sally Wilson on March 7, 2009 at 2:51pm

I am new to the site also. The only treatment I remember is scalp massage,no medications and no needles, though I was subjected to invasive examinations that had no bearing on the condition. The comments below seem to be from people young enough to be my grandchildren, are there any members in my generation?
Sally

Comment by elaine on March 6, 2009 at 5:25am

hi mike welcome. This site is a big help. I still have days where it gets to me 2 but it doesn't last nearly as long now. I love it when people say to me I like your hair or oh your hair has grown, I just don't let on it's a wig hahaha

Comment by elaine on February 28, 2009 at 3:11pm

just read some more comments and I so agree it is great not having to worry about shaving my legs etc no moaning from my other half cos i've pinched his razor lol. I use brown eyeshadow to draw in eyebrows

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