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Comment by Julia on January 3, 2009 at 6:21pm

Greetings,

What you all have been waiting for is now available at www.lulu.com/content/5361121

A percentage of the books proceeds will be used to assist women with Alopecia obtain a grant to receive QUALITY wigs because the insurance companies do not view one getting a wig due to Alopecia as medically necessary.

My Mission is to continue to raise awareness about Alopecia and to help others realize that it’s not about what’s on the outside that matters. I challenge each and every one of you to just LIVE…Embrace Life…Embrace Change and most importantly Embrace YOU…with or without hair!

Visit my storefront to learn more >>

Comment by Johnny Q on December 29, 2008 at 2:05pm

Hi, I'm Johnny, I'm 36 years old and I lost my hair at age 11, it never came back. It's nice to know I'm not alone.

Comment by Patricia Lyn Rhue on December 23, 2008 at 8:56am

I was completely AU by 4 years old. My family put me on the front page of the Norman Transcript, where the AP wire picked it up and it ran across all 50 states with many of the picture and article on the front page. I got my first wig at 4 so it was a huge in 1962. I didn't like wearing the wig and usually didn't. SInce the town knew me, I would go everywhere with my grandparent bald. I was blessed to have a family that loved me just the way I was. It was my mother who wanted to the wig, but since I lived with my grandparents, I was okay with the baldness. My uncle, who was my legal guardian was the best. He taught me to accept myself and be honest to others, which truly prevented the worst from happening. I tried lying about it when I was in Junior High School after we moved to Kentucky and all I got was heartache. It was pulled off, I was made fun of, but once I stopped lying about it and admitted that I wore a wig, there wasn't anything for the others to prove and they left me alone. I learned how to wear makeup and the right wigs, which kept people from noticing when I started college and I truly never lost my self confidence through all those years. I know I am bald for a reason and I don't allow it to be a crutch or to ruin my life. I love who I am. If you would like to read all of my story and also tips on wearing a wig, please visit my site www.iwearawig.com. It is loaded with all my experiences and I am still working to add more.

Comment by jessica on December 23, 2008 at 12:08am

i am 34 years old, born with alopecia.

Comment by shuaa on December 22, 2008 at 8:29pm

hi , i'm new at this site and i lost my hair at 15, so its been 12 yrs, this is my first time in sharing my "alopecia" with someone who really understand the meaning of the word.

Comment by Laura on December 18, 2008 at 10:53pm

I have had alopecia since I was three years old. I only started wearing a wig a couple of years ago. Growing up in a small town, people are pretty accepting and don't ask a lot of questions. I found going to college to be the biggest challenge I faced so far in my life. I look back at pictures in high school and wonder why in the world I never wore a wig....even a hat?! I guess that I felt that if I did, evveryone would think that I was trying to hide who I was. They would think I was ashamed. That was worse to me than not having hair. There are little struggles in every day. Some days are better or worse than others. I just find ways to cope and focus on the things in my life that I can control.

Comment by Patricia Lyn Rhue on December 12, 2008 at 9:55am

I am 50 years old and since this is the year of jubilee, I rejoice in my life. Being bald for 46 years has given me a knowledge to help others. please visit www.iwearawig.com to learn more about me and if I can help, I am here through live chat or emails!

Comment by Frank on December 9, 2008 at 7:20pm

Wow.... I appreciate the comments. LOL... you all make me feel so chicken... Just kidding. It is actually very encouraging to hear from you and I really appreciate you sharing your experiences. I've got to and I want to. Its just that damn.... Its going to be more like a month before I will get through it. Every day at the office is going to be an adventure for that first month. And then I have to meet my clients without it. LOL... some will say its about time I am sure. Others I am afraid I will put into shock (they are retired after all).

Comment by David on December 8, 2008 at 4:17pm

Frank - I didn't go as long as you have with "covering" up. When my hair first fell out at age 5, my parents would not let me leave the house without wearing a ball cap. Eventually wearing a ball cap became part of my life and I would never go out in public without it. At school, I was only allowed to wear a hat with the school emblem on it. I wore a hat every day until I was in 11th grade.

In December of 1998, I was involved in a bad traffic collision, resulting in several of my family members being hospitalized. During the traffic collision, my hat fell off. I was more concerned with my families well being than myself feeling secured under my hat. I never found the hat and was forced for the first time in my life to face going bald in public. I did not have a spare one at home either. I did without a hat for approximately two weeks before returning to school.

On my first day back, I did not have my older brother to go in first to buy me a hat. He had already graduated and so I was stuck on going in bald until I could buy one. Once I got enough courage built up, I went in. The school store wasn't open and so I had to attend 1st period without it. There was a ton of things going through my mind and I couldn't really focus. At the end of that class, I decided I would just continue the rest of the day without it.

By the end of the day, I felt so free. In fact, I think I gained less attention from people without my hat. When I wore the hat, it was still obvious I was bald. There were always curious people who either wanted me to remove it or try to remove it for me. Without my hat, people didn't have that curiosity.

From that day on, I have refused to wear a hat. Usually when I meet new people, they just assume I shave my head. They eventually notice I don't have any eyebrows or eyelashes and might ask about it. I explain to them and I guess they appreciate me being honest. I am comfortable with who I am and have learned to not care too much what others think.

Comment by John Paul on December 8, 2008 at 10:47am

Frank - It's not easy, but extremely liberating. Just need to take the plunge and let go. I should have done it when i left hight school, when i left college and then when i left law school! Looking back on it now, the only person who couldn't deal with it at the time was me. But when i was finally ready (perhaps in some ways more than others), it felt right and just took a little time to acclimate. Like Melinda said, EVERYONE in my life was excited for me, and then it was back to business as usual and never again did i have to worry about the BS of wigs - making the choice was ultimately empowering. I actually felt like i could finally be the real me. Nothing to hide, as your friend suggested. I wish I'd never worn a wig at all, but - as a kid - the choice was (somewhat) made for me, and then i never felt like i could get out from under it. This is admittedly an easier issue for guys - and particularly in the year 2008 - but it's really true for everyone and you'll see that throughout the site. There are no wrong answers with how you deal with Alopecia - in the end , you do whatever feels best - but the support and inspiration of others certainly shows that you can take whatever that next step is and keep moving forward. The fact that you're asking the question is 95% of the battle. Good luck...

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