Replies to This Discussion

Permalink Reply by JeffreySF on November 18, 2008 at 7:19pm

I just say hello, good morning etc... to them and go from there.

Permalink Reply by Sharan on December 1, 2008 at 3:12pm

Well I was at a 40th birthday party on Saturday. I dont wear my wigs anymore. I spotted a man a few tables away who I thought had alopecia. He had no lashes, brows and the growth he did have it was shaved and i could see the circles of smoothness over his scalp. I caught him glance a few times at me. I did swither about approaching him but it is so delicate. At the end of the night, as I left the toilets, I walked into him. Right away I asked if he had alopecia. He said that he did. He looked at me and said he thought I had Leukemia as I had such a smooth head. I didnt expect him to say that. We had a lovely chat for unfortunately only 5 mins, if I had been braver earlier in the night it could have been for a wee bit longer. I think we were meant to bump into each other
The thought of approaching this man was rather a dilemma all night. I was sitting with my sister-in-law. She has had Crohn's Disease since she was 17 and a colostomy for 20years. I asked if there was someone in the room, you knew was in the same position, would you want to go talk to them about it. She said no way. As it turned out I did connect with the man, destiny saw to that

Permalink Reply by JeffreySF on December 1, 2008 at 7:20pm

Hi Sharan,
I'm glad you spoke to the bloke.

Jeff

Permalink Reply by Andrea on December 2, 2008 at 8:27pm

I sooooo want to find another alopecian like me. Every time I see a bald person or someone in an obvious wig or headscarf I want to run over to them and ask....

I hold myself back because I hate being thought of as a cancer patient.

But, I sooooo wish I could meet just one person like myself.

Permalink Reply by Tnabugg on April 3, 2009 at 12:16am

You know that's a tough call cause I'm not comfortable when people who think I have cancer approach me. I don't like being acknowlegdged in public about this because it makes it more real I guess.

I am still holding out hope that my hair will come back. Strange or sad as it may sound...

But if the person has a positive response, then hey.. that's awesome!!!

I would feel more safer meeting people here. I remember when I first found this site and saw photos of people who looked just like me. I cried. I finally felt like I wasn't alone.