I was transfused with blood containing Alopecia Universalia a hairloss disease that removes every hair from the body, causing complete permanent baldness, without it I wouldn't be alive today honestly, that and the grace of god. The main reason for it was due to the fact that I was three months premature, as I've said without the blood transfusion I wouldn't be here. This caused much pain and misunderstanding of the world around me and those who interacted with me negatively, I was scared of what had become of me, confused of why I was cursed with this disease and broken when I endured intense bullying and name calls which shattered how I viewed people for a very very long time. I pray to god that whoever has this life altering rare disease copes with it better than I have.

After a while people began to ask me questions pertaining to my appearance, some have asked the typical questions. "Why are you bald?" "Do you have cancer?" "Did you shave your hair?" I refrained from giving them the name of the condition because it wouldn't matter, they wouldn't know what it was so I dumbed it down to a simple. "A major hair loss disease that's permanent." I wished someone had asked questions like how does it make you feel to be different from everyone else? Or does being bald affect you in the public? Questions like those that would open up doors for me to release how I've dealt with this or what I've been feeling for so long. This carried on until the end of High School. I had so much grief when trying to grow accustomed to being different physically and socially. I would've never guessed being so physically different could result in SO much negativity, really surprising. As a result of the pain and misinterpretations I closed off from people in general, shunned myself away into the blackness. I bottle up my emotions and my feelings about how I feel about things, and it's difficult at the same time when I want to vent and tell others how I feel, but I just can't bring myself to do it. As to how I manage it? I don't I refused wigs, ridiculous products for hair growth and anything like that. I just accept my appearance as it is.

I have no clue how to really sum up everything but for the latter. When I last visited the doctor's in regard to my condition which was three years ago. He asked me whether I accepted the condition as it was or not considering there's no known cure for it. I overtime began to accept the results of the condition and see it was it was. Nothing can be done about it, I'm cursed to live with it forever so I told him. "Yes I accepted it." He applauded me, gave me a compliment saying the bald look suits me lol. I didn't really believe that but maybe he's right? Who knows. Though I wonder to this day why I was spared when so many have died premature, I was born into the world on death's bed, even with the transfusions I wouldnt've survived. It was the grace and mercy of god that I was able to survive today. I wonder what purpose he had set for me. Dunno if this was enough clarity, but I didn't want to rant about every detail and elaborate. But I will happily if you have anything to point out.

This is my story. I hope someone learns something from this.