Comment

Comment by Jana on February 13, 2012 at 7:45pm

I tried a search, and got nothing. Will try again, and let everyone know.

Comment by Jennifer Krahn on February 13, 2012 at 7:43pm

Hi Terri, Canaaf's facebook page I've discovered has now changed to a private group page to which you can ask to be apart. You can search them on Facebook and hopefully they will come up.

Comment by Jana on February 13, 2012 at 1:06am

I don't know about on AW, but CANAAF is Toronto-based. Check out there website.

Comment by Melissa on February 12, 2012 at 11:16pm

Is there a GTA group here?

Comment by Bald and Fabulous AKA Terri on February 12, 2012 at 11:03am

unfortunately it seems that CANAAF might have taken down there fb page. For I have "like"d their page earlier and now i cant reach it. Maybe its just technically issues.

Comment by Jana on February 10, 2012 at 11:12pm

@JenniferKrahn Cannot get that FB link to work, and cannot find CANAAF on FB via search. Hmmm . .. .

Comment by Jennifer Krahn on February 8, 2012 at 4:14pm

Hi all,
Here is a link to CANAAF's (Canadian Alopecia Areata Foundation) Facebook page. This page is sharing some great stories of success and the CANAAf group seems to want to share more stories here. Check it out and join. http://www.facebook.com/index.php?lh=f0c30a2e691baed46e8ed098f3c5787c#!/groups/138725316179572/

Comment by Jana on February 7, 2012 at 5:29pm

Hi Everyone! I have been working with Silkhead and Tanya - and many others - here in Vancouver, to grow the local alopecian community. Feeling I should go back and change that verb. ; )

One of the things that strikes me is that there may be many regions or cities that want to echo what CANAAF has set upon in Toronto. Is this the right forum for us to discuss our local intentions, our commonalities, and then to approach CANAAF collectively to build upon what they are doing, to affiliate?

Tanya has listed some of the critical elements in terms of local first steps. I am wondering what the critical elements might be, in coming together, and in not reinventing the wheel in each of our locations. Very excited about the possibilities, in working together!

Comment by Tanya on February 2, 2012 at 5:17am

Hi everyone! Sorry if I didn't reply to you! I wasn't following this discussion (but now I am :))

@Jennifer Are you kidding!! We want you to come and join us!! We are a great group of people too. Please come out tonight (Feb 2nd) if you are available! I will send you the details :)
(Our group is here: http://www.alopeciaworld.com/group/vancouveralopeciasupportgroup)

We'll be skyping with the Calgary group because we happen to host the meetup on the same night!

@Jennifer Krahn Oh that's fantastic! How many members do you have so far? We have been brainstorming on ways to get more members too, because at the heart of the support group - to be a true well-rounded support resource - we want to reach out to as many people with alopecia as possible. Many of us have felt alone and in the dark at some point, esp. in the beginning...no one should have to feel that they are alone in this!

Some ideas for gaining members in Winnipeg:
- get listed on CANAAF and NAAF
- get dermatologists, wig shops, and hair salons to tell their alopecia patients about the group (the first three places people visit at onset :))
- set up group on Facebook, Twitter, and Alopecia World
- post to forums and craigslist
- get on local press and media
- visit schools to raise awareness

cheers!
Tanya

Comment by Sandra Fournier on January 16, 2012 at 12:50pm

Hi Everyone,
A fabulous lady and friend of mine from Calgary who has Alopecia will be hosting a casual support- group meeting on Feb.2nd from 7:00 p.m. - 9:00 p.m. please private message me if you are interested in attending and I'll pass along the details.
Thanks!
Sandra

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