Hi Jana I am Mike Mayas Dad. I joined to find more people in the Vancouver area to find more people kids or parents that r going through the same thing we r. Maya has had Alopecia for about two yrs now. Where or when is the next meeting? Thx Mike
You asked some very good questions on the ohter website concerning the new patent. I have to wonder if this is why he would not disclose how he 'cured' himself - because he wanted to patent it so he could make money. Sure the 'intention' is to give the profits to his group but with no board of directors - he is his group. Profits can be manipulated and frankly I think it stinks that he has held off telling what he did saying it needed 'more research' when all along this is what he had in mind. If I ever thought I would give that group a chance I surely will not now. I hope you will continue to ask the tough questions.
Hello. I don't know what I did wrong with the facebook link for CANAAF...I assumed copy and paste would work (arghhhhhh)http://www.facebook.com/index.php?lh=f0c30a2e691baed46e8ed098f3c5787c#!/groups/138725316179572/ (second try) You can look them up from their webpage perhaps?? As for getting a support group up and running it seems like crickets in my city. I have met a few people with alopecia but most don't want to meet as a group. I was thinking of heading to a couple local wig shops to post informative posters about a meeting but my major issue is that for me a support group is a conflict of interest as I am now a Rep for Freedom Wigs and I don't want to come off as trying to sell a product. What I have been trying to do is see if my clients would like me to hook them up to begin support groups in their area (with their permission of course)or I refer them to CANAAF. I would LOVE to start a group and really get it to fly...there are so many amazing people with alopecia to meet!
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.