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Latest Activity

lea commented on Cheryl, Co-founder's event NAAF International Conference
"Is any of this going to be online. Thanks"
lea is attending Cheryl, Co-founder's event

NAAF International Conference at Washington, DC

June 30, 2022 at 6pm to July 3, 2022 at 7pm
37TH ANNUAL ALOPECIA AREATA PATIENT CONFERENCE RETURNS TO WASHINGTON, DC, FROM JUNE 30 TO JULY 3, 2022!A COMMUNITY REUNITED!Join NAAF in celebrating NAAF’s 40th anniversary at "A Community Reunited", the annual NAAF International Conference, scheduled for Thursday, June 30, to Sunday, July 3, 2022, in Washington DC. This unforgettable experience - the first in-person…See More
lea liked Cheryl, Co-founder's event NAAF International Conference
Char24 liked lea's video
Mar 30
lea's video was featured

Jada Pinkett Smith Reveals New Hair Loss in Alopecia Update

Jada Pinkett Smith Reveals New Hair Loss in Alopecia Update
Jan 17
Cheryl, Co-founder liked lea's video
Jan 12
lea posted a video

Jada Pinkett Smith Reveals New Hair Loss in Alopecia Update

Mama’s gonna put some rhinestones on there and make a crown
Jan 8
lea liked lea's video
Jan 8
lea posted a video

Jada Pinkett Smith Reveals New Hair Loss in Alopecia Update

Jada Pinkett Smith Reveals New Hair Loss in Alopecia Update
Dec 29, 2021
lea commented on Lauren Simpson's group Seattle Area Alopecians
Dec 29, 2021
Shun liked lea's video
Sep 6, 2021
lea liked PatchProblems's video
Aug 10, 2021
lea commented on Lauren Simpson's group Seattle Area Alopecians
"2 more things like to share: A) for children / parents Vancouver BC online meet, see NAAF.org and flyer  Vancouver, BC Children's Virtual Support Meeting Aug 14, 2021, 10:00AM PDT B)  Save the date for Alopecia Support Group…"
Jul 30, 2021
lea commented on Lauren Simpson's group Seattle Area Alopecians
Jul 23, 2021
lea commented on Lauren Simpson's group Seattle Area Alopecians
"Hello all, Hope having a good summer, I don't know of any in person meets. However, heard with NAAF.org that even out of state people can join Zoom meets. And there is one upcoming in CA 7/28 6:30pm PST. Please RSVP with the host/leader and see…"
Jul 23, 2021
lea replied to Kyle D's discussion Please help, patch of hair loss above ear
"Hello Kyle, You might want to book an appointment with your GM or regular doctor even dermatologist. Sometimes there can be test to see if have any deficiencies or other health flares. Ie thyroid disorders can sometimes can loss etc. Best"
Jul 19, 2021

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Comment Wall (8 comments)

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At 6:14pm on February 25, 2020, Bon said…

Hi Lea, I'm sorry I've been so dangned busy.....yesterday my naturopath gave me my first LAI injection....the LDN seems to have slowed the shedding of what I have left of hair, but left upper eyelash, outer edge of right eyebrow and nails are being affected that latter 3 in last 2 weeks! Anyway, where do I find your number to get in touch through texts or calls?  I have 3 new sites I'm learning to navigate and just created a FB account, which I wanted to avoid, but they all use it. Please advise and THANK YOU for being there, you've no idea how much it means. I am not freaking out over this but I do want to do everything I can to arrest the 'issue'.  Be well, Bon

At 9:25am on February 20, 2020, Bon said…

Good Morning Lea, this is Bon still not sure how this site works.  I have been so busy learning about my 'condition' that I haven't been able to spend enough time perusing it.  I REALLY want to connect with the Seattle group but am not getting a response from the contact.  Not sure why. Eventually I would like to start a group North of Seattle from say....Millcreek to  Standwood or Arlington. I am in the process of learning about alternative treatments (naturopath) is trying LDN and LDA very interesting possibilities! Faux hair of course, nothing new to me as I was a hairdresser and have loved faux hair since then. I have 9 wigs of various colors and styles, fun. Problem is as I lose hair my scalp is so tender! Am looking to have them retrofitted with silicon around hair line.  They are Jon Renau....around $300 with tax?  If you have any suggestions re: Thank you for friending me,  Bon 

At 9:01pm on August 10, 2017, Madbrown said…
I mean I am fine with going to the Seattle one to start.
At 8:27pm on August 10, 2017, Madbrown said…
I am fine with trying to setup something down here if there are people in the area that would want to. I can definitely do Seattle area also to start. Where would the Seattle one be at?
At 3:20pm on July 25, 2017, ayshia2000 said…

Hi Lea, that you for your reply. It is my 7 year old granddaughter who has been recently diagnosed My daughter has several questions and wanted to attend a event  while she is here. You see they live in Dubai, she comes once a year to stay with me for a few weeks.They will be here next month  for only 16 days. I want to give them all the help and support that I can, but thats hard when they live so far away. So I have been doing my own research , reading post and learning so much from kind people like you and others in this group. She has ask me if I can find a Allergist in our area, Tacoma/Seattle. She has taken my granddaughter to two Derm doctors already there, but wants her to get checked out here in the states. Do you know of any? Also thank you for telling me about the up-coming meet up, but they dont arrive till August 9th . Thank you  for your help.

At 2:13am on June 11, 2014, LeslieAnn Butler said…

There are a number of groups in Portland. On Alopecia World, there are two you can join: Active Alopecians in Portland, and Pacific Northwest Alopecians. NAAF lists this support group here in Portland: Denise Clopton/Brooke Ferguson
503.804.5315.  I can't find the contact information on the group I have met with in the past! Sorry, I will try to find it for you.

And thanks for wanting to read my book! Let me know how you like it.


At 1:02pm on June 5, 2014, LeslieAnn Butler said…

Hey thanks, let me know how you like the book. And yes, there is a meetup group in Portland. Do you go to one in Seatte?

At 5:31pm on December 12, 2012, LeslieAnn Butler said…

Hello and welcome, Lea!
How are you today?
Leslie Ann



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