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  • Tacoma, WA
  • United States
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Latest Activity

Delena Smith commented on leah's video

Jada Pinkett Smith Reveals New Hair Loss in Alopecia Update

"I wish she could talk some time on this platform!"
Oct 21
Delena Smith liked leah's video
Oct 21
leah commented on Cheryl, Co-founder's video

Two girls with alopecia form special bond after chance meeting

"Great story and friendship, thanks Cheryl. :) <3"
Sep 26
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Sep 26
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Aug 10
leah posted an event

You Are Not Alone: NAAF Ed. Empowerment Webinar Series 6/9 4 PST at Online 4 PTS

June 9, 2022 from 4pm to 8pm
You Are Not Alone: NAAF Education and Empowerment Webinar Seriescapture.pngThursday, June 9, 2022 - 4:00pm Contact: Judy WilliamsEmail: Judy@naaf.orgLink: Register Now"RESILIENCE, COURAGE AND CONFIDENCE"As part of NAAF's "You Are Not Alone: NAAF Education and Empowerment Webinar Series," our first of 12 webinars will kick off with “Resilience, Courage and Confidence” featuring Shamsha Damani and Sofia Martinez. Shamsha was diagnosed with alopecia universalis since 2013 and serves as a support…See More
Jun 7
leah liked Cheryl, Co-founder's video
Jun 4
leah commented on Lauren Simpson's group Seattle Area Alopecians
"Hello just want to share this webinar and series that sounds good on Alopecia. https://www.naaf.org/event/you-are-not-alone-naaf-education-and-empowerment-webinar-series You Are Not Alone: NAAF Education and Empowerment Webinar…"
Jun 4
leah commented on Cheryl, Co-founder's event NAAF International Conference
"I realize isn't online, wish all a great event. There is a webniar if I may share with NAAF coming up:  You Are Not Alone: NAAF Education and Empowerment Webinar Seriescapture.pngThursday, June 9, 2022 - 4:00pm Contact: Judy WilliamsEmail:…"
Jun 4
leah updated their profile
Jun 4
leah commented on Cheryl, Co-founder's event NAAF International Conference
"Is any of this going to be online. Thanks"
May 19
leah is attending Cheryl, Co-founder's event

NAAF International Conference at Washington, DC

June 30, 2022 at 6pm to July 3, 2022 at 7pm
37TH ANNUAL ALOPECIA AREATA PATIENT CONFERENCE RETURNS TO WASHINGTON, DC, FROM JUNE 30 TO JULY 3, 2022!A COMMUNITY REUNITED!Join NAAF in celebrating NAAF’s 40th anniversary at "A Community Reunited", the annual NAAF International Conference, scheduled for Thursday, June 30, to Sunday, July 3, 2022, in Washington DC. This unforgettable experience - the first in-person…See More
May 19
leah liked Cheryl, Co-founder's event NAAF International Conference
May 19
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Mar 30
leah's video was featured

Jada Pinkett Smith Reveals New Hair Loss in Alopecia Update

Jada Pinkett Smith Reveals New Hair Loss in Alopecia Update
Jan 17
Cheryl, Co-founder liked leah's video
Jan 12

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Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (8 comments)

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At 6:14pm on February 25, 2020, Bon said…

Hi Lea, I'm sorry I've been so dangned busy.....yesterday my naturopath gave me my first LAI injection....the LDN seems to have slowed the shedding of what I have left of hair, but left upper eyelash, outer edge of right eyebrow and nails are being affected that latter 3 in last 2 weeks! Anyway, where do I find your number to get in touch through texts or calls?  I have 3 new sites I'm learning to navigate and just created a FB account, which I wanted to avoid, but they all use it. Please advise and THANK YOU for being there, you've no idea how much it means. I am not freaking out over this but I do want to do everything I can to arrest the 'issue'.  Be well, Bon

At 9:25am on February 20, 2020, Bon said…

Good Morning Lea, this is Bon still not sure how this site works.  I have been so busy learning about my 'condition' that I haven't been able to spend enough time perusing it.  I REALLY want to connect with the Seattle group but am not getting a response from the contact.  Not sure why. Eventually I would like to start a group North of Seattle from say....Millcreek to  Standwood or Arlington. I am in the process of learning about alternative treatments (naturopath) is trying LDN and LDA very interesting possibilities! Faux hair of course, nothing new to me as I was a hairdresser and have loved faux hair since then. I have 9 wigs of various colors and styles, fun. Problem is as I lose hair my scalp is so tender! Am looking to have them retrofitted with silicon around hair line.  They are Jon Renau....around $300 with tax?  If you have any suggestions re: Thank you for friending me,  Bon 

At 9:01pm on August 10, 2017, Madbrown said…
I mean I am fine with going to the Seattle one to start.
At 8:27pm on August 10, 2017, Madbrown said…
I am fine with trying to setup something down here if there are people in the area that would want to. I can definitely do Seattle area also to start. Where would the Seattle one be at?
At 3:20pm on July 25, 2017, ayshia2000 said…

Hi Lea, that you for your reply. It is my 7 year old granddaughter who has been recently diagnosed My daughter has several questions and wanted to attend a event  while she is here. You see they live in Dubai, she comes once a year to stay with me for a few weeks.They will be here next month  for only 16 days. I want to give them all the help and support that I can, but thats hard when they live so far away. So I have been doing my own research , reading post and learning so much from kind people like you and others in this group. She has ask me if I can find a Allergist in our area, Tacoma/Seattle. She has taken my granddaughter to two Derm doctors already there, but wants her to get checked out here in the states. Do you know of any? Also thank you for telling me about the up-coming meet up, but they dont arrive till August 9th . Thank you  for your help.

At 2:13am on June 11, 2014, LeslieAnn Butler said…

There are a number of groups in Portland. On Alopecia World, there are two you can join: Active Alopecians in Portland, and Pacific Northwest Alopecians. NAAF lists this support group here in Portland: Denise Clopton/Brooke Ferguson
503.804.5315.  I can't find the contact information on the group I have met with in the past! Sorry, I will try to find it for you.

And thanks for wanting to read my book! Let me know how you like it.


At 1:02pm on June 5, 2014, LeslieAnn Butler said…

Hey thanks, let me know how you like the book. And yes, there is a meetup group in Portland. Do you go to one in Seatte?

At 5:31pm on December 12, 2012, LeslieAnn Butler said…

Hello and welcome, Lea!
How are you today?
Leslie Ann



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