• Female
  • Tacoma, WA
  • United States
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Latest Activity

Abde liked leah's event Walk For Alopecia (NAAF)
Sep 28, 2023
leah posted an event

Walk For Alopecia (NAAF) at Anywhwere

September 1, 2023 to September 30, 2023
Walk For Alopecia™September 30, 2023San Francisco at Lake Merced(Walk located at Lake Merced Blvd. Parking Lot at intersection of Lake Merced Blvd. & Sunset Blvd.)Happy Alopecia Awareness Month. NAAF is doing the following:…See More
Sep 4, 2023
leah liked Cheryl, Co-founder's event Walk for Alopecia - Rochester Hills, Michigan
Sep 1, 2023
leah liked Cheryl, Co-founder's video
Jul 18, 2023
leah commented on Cheryl, Co-founder's event NAAF Annual Patient Conference - Registration Open!
"PS If want please share any good details, knowledge learned at etc. Also if they know where the next one will be. Thanks"
Jun 29, 2023
leah commented on Cheryl, Co-founder's event NAAF Annual Patient Conference - Registration Open!
"Wish all going a great conference! "
Jun 29, 2023
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"Yes, great points  above and I echo what SabineTawni said. Maybe a second opinion /another dr be better. That's hard and I hope doing alright. Know what like to wait while for good doctor etc and to get a bad one."
Jun 8, 2023
leah replied to snoopylover's discussion Relapse on Xeljanz experiences!
"Sorry to hear T, I have tekn this just empathize and interested. Do you have dermaologist you get  Xeljanz from and maybe could reach out to them. I wonder if could do like monthly reminder app to renew the rx. I try do things with…"
Jun 5, 2023
leah's video was featured

Doctor with Alopecia Discusses New Olumiant Drug

New hair loss drug to cure my baldness? Dr. Gary Linkov talks about potential alopecia areata cure - Olumiant (baricitinib).Subscribe to our hair newsletter:...This Vlogger is great, with a medical background and fellow Alopecian gives detailed…
May 11, 2023
Sherry Schaefer liked leah's video
May 3, 2023
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
Mar 7, 2023
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"hi again I was checking out the RX URl and found the following:  1-844-OLUMIANT 1-844-658-6426 Lily the maker might know of dr in Germany etc. Also they have this program " A Companion in Care will give you a welcome call to talk about how…"
Mar 7, 2023
Baldielocks and leah are now friends
Feb 21, 2023
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
" babashanti I hear you with wait and hope time cango quick for you. Thanks for the update. best (ps summer will be here Soon =) )"
Feb 20, 2023
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"Thanks Babashanti. Also have you seen this discussion on this site "OLUMIANT Alopecia Community Watch – The Good, The Bad and The Ugly!" maybe have some tips…"
Feb 12, 2023
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"Ps have you seen if there any specific groups in Germany that maybe have folsk that have derm recommendation too, just a thought. "
Feb 7, 2023

Profile Information

Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (8 comments)

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At 6:14pm on February 25, 2020, Bon said…

Hi Lea, I'm sorry I've been so dangned busy.....yesterday my naturopath gave me my first LAI injection....the LDN seems to have slowed the shedding of what I have left of hair, but left upper eyelash, outer edge of right eyebrow and nails are being affected that latter 3 in last 2 weeks! Anyway, where do I find your number to get in touch through texts or calls?  I have 3 new sites I'm learning to navigate and just created a FB account, which I wanted to avoid, but they all use it. Please advise and THANK YOU for being there, you've no idea how much it means. I am not freaking out over this but I do want to do everything I can to arrest the 'issue'.  Be well, Bon

At 9:25am on February 20, 2020, Bon said…

Good Morning Lea, this is Bon still not sure how this site works.  I have been so busy learning about my 'condition' that I haven't been able to spend enough time perusing it.  I REALLY want to connect with the Seattle group but am not getting a response from the contact.  Not sure why. Eventually I would like to start a group North of Seattle from say....Millcreek to  Standwood or Arlington. I am in the process of learning about alternative treatments (naturopath) is trying LDN and LDA very interesting possibilities! Faux hair of course, nothing new to me as I was a hairdresser and have loved faux hair since then. I have 9 wigs of various colors and styles, fun. Problem is as I lose hair my scalp is so tender! Am looking to have them retrofitted with silicon around hair line.  They are Jon Renau....around $300 with tax?  If you have any suggestions re: Thank you for friending me,  Bon 

At 9:01pm on August 10, 2017, Madbrown said…
I mean I am fine with going to the Seattle one to start.
At 8:27pm on August 10, 2017, Madbrown said…
I am fine with trying to setup something down here if there are people in the area that would want to. I can definitely do Seattle area also to start. Where would the Seattle one be at?
At 3:20pm on July 25, 2017, ayshia2000 said…

Hi Lea, that you for your reply. It is my 7 year old granddaughter who has been recently diagnosed My daughter has several questions and wanted to attend a event  while she is here. You see they live in Dubai, she comes once a year to stay with me for a few weeks.They will be here next month  for only 16 days. I want to give them all the help and support that I can, but thats hard when they live so far away. So I have been doing my own research , reading post and learning so much from kind people like you and others in this group. She has ask me if I can find a Allergist in our area, Tacoma/Seattle. She has taken my granddaughter to two Derm doctors already there, but wants her to get checked out here in the states. Do you know of any? Also thank you for telling me about the up-coming meet up, but they dont arrive till August 9th . Thank you  for your help.

At 2:13am on June 11, 2014, LeslieAnn Butler said…

There are a number of groups in Portland. On Alopecia World, there are two you can join: Active Alopecians in Portland, and Pacific Northwest Alopecians. NAAF lists this support group here in Portland: Denise Clopton/Brooke Ferguson
503.804.5315.  I can't find the contact information on the group I have met with in the past! Sorry, I will try to find it for you.

And thanks for wanting to read my book! Let me know how you like it.


At 1:02pm on June 5, 2014, LeslieAnn Butler said…

Hey thanks, let me know how you like the book. And yes, there is a meetup group in Portland. Do you go to one in Seatte?

At 5:31pm on December 12, 2012, LeslieAnn Butler said…

Hello and welcome, Lea!
How are you today?
Leslie Ann



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