Doctor with Alopecia Discusses New Olumiant Drug

New hair loss drug to cure my baldness? Dr. Gary Linkov talks about potential alopecia areata cure - Olumiant (baricitinib).Subscribe to our hair newsletter:...This Vlogger is great, with a medical background and fellow Alopecian gives detailed background, on new Alopecia treatment, side effects, how long and recommendation on longer studies, critical thinking, etc. Just wanted share, please share your thoughts

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Comment by Margaret Brennan on January 9, 2023 at 1:47pm

what has concerned me from the beginning of reading about this drug has been the side effects.  since it has to be taken for a very long time what are the chances of cancer in the long term or cardiac problems.   At my age - almost 78 I can see me trying it because I am towards the end of my life, not just the start.  But still my family has a very high cancer rate so...... not sure I will take the risk.

Comment by Christine on January 9, 2023 at 8:44pm

I agree Margaret, I’m 66 and as much as I want my hair back, not sure the risk vs benefit is worth it. These type of drugs lower your immune system to work. This seems to open you up to dangerous infections and illnesses. I understand these types of drugs may be the only hope for hair regrowth, at least right now. Always praying for a safe cure. 

Comment by dianna on January 10, 2023 at 6:44pm

how we getting this tablets???

Comment by leah on January 12, 2023 at 12:15am

empathize and worry about health risks. I have concerns with, in addition, The costs -an article I found said was around $2400 monthly and when i look goodrx says $3500!!! For a month. Longer term also be good know, spend  thousands with dermatologist on cortisone shots, creams etc and hairloss came back. It also appears maybe tricky to get. But one may through Rhematologist. I'll ask derm/dr next visit. And keep researching. Links I found so far how to get ino and coststtps://www.biopharmadive.com/news/lilly-fda-approval-alopecia-

Comment by leah on January 12, 2023 at 12:17am

i've used goodrx to find and refer patients for lower costs drugs. Finallly, can look for self is wild over $3500 https://www.goodrx.com/olumiant

Comment by leah on January 12, 2023 at 12:23am

The prescription maker might also be resource on where to get / assistance w/ costs and how to work insurance. Sometimes they help people https://lilly.mediaroom.com/2022-06-13-FDA-Approves-Lilly-and-Incyt...

Comment by leah on January 12, 2023 at 12:27am

PSS NAAF is having a Webinar about 

UPCOMING WEBINARS

WEDNESDAY, JANUARY 18, 2023 - 7PM ET/ 6PM CT/ 4PM PT

JAK INHIBITOR TREATMENT FOR ALOPECIA AREATA: UNDERSTANDING SIDE EFFECTS AND MONITORING

Speaker:  Maryanne Senna, MD - Assistant Professor of Dermatology, Harvard Medical School Director, Lahey Hair Loss Center of Excellence and Research Unit, Beth Israel Lahey Health

Learn more about JAK inhibitors for the treatment of alopecia areata,,,

https://us02web.zoom.us/webinar/register/WN_gmKPhQEDSF2QuLcq5piSaA

Comment by Jody on January 12, 2023 at 9:43pm

I’m actually taking the Olumiant. I have been on it since late September. I only pay 5 dollars with my insurance for a 30 day supply and that is with Olumiant discount card from the company. You can go on the their website to see if you are eligible for the discount. I have noticed I have more hair, eyelashes, and other areas. I have little side effects, mostly tired. My dermatologist does test to make sure everything is alright. Which it has been. If I don’t see any more significant hair growth, I will discontinue it. 

Comment by leah on January 17, 2023 at 8:44pm

Thanks Jody. Good to hear from someone who has first hand experience with Olumiant. Am sorry your not having significant hair growth. If okay, may I please if mind if I check in with you on it or mind sharing here? Thanks and best

Comment by Jody on January 18, 2023 at 7:03am

Yes, you can check in! I don’t mind at all… 

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