Walk For Alopecia™September 30, 2023San Francisco at Lake Merced(Walk located at Lake Merced Blvd. Parking Lot at intersection of Lake Merced Blvd. & Sunset Blvd.)Happy Alopecia Awareness Month. NAAF is doing the following:…See More
"Yes, great points above and I echo what SabineTawni said. Maybe a second opinion /another dr be better. That's hard and I hope doing alright. Know what like to wait while for good doctor etc and to get a bad one."
"Sorry to hear T, I have tekn this just empathize and interested. Do you have dermaologist you get Xeljanz from and maybe could reach out to them. I wonder if could do like monthly reminder app to renew the rx. I try do things with…"
New hair loss drug to cure my baldness? Dr. Gary Linkov talks about potential alopecia areata cure - Olumiant (baricitinib).Subscribe to our hair newsletter:...This Vlogger is great, with a medical background and fellow Alopecian gives detailed…
"hi again I was checking out the RX URl and found the following:
Lily the maker might know of dr in Germany etc. Also they have this program
A Companion in Care will give you a welcome call to talk about how…"
Hi Lea, I'm sorry I've been so dangned busy.....yesterday my naturopath gave me my first LAI injection....the LDN seems to have slowed the shedding of what I have left of hair, but left upper eyelash, outer edge of right eyebrow and nails are being affected that latter 3 in last 2 weeks! Anyway, where do I find your number to get in touch through texts or calls? I have 3 new sites I'm learning to navigate and just created a FB account, which I wanted to avoid, but they all use it. Please advise and THANK YOU for being there, you've no idea how much it means. I am not freaking out over this but I do want to do everything I can to arrest the 'issue'. Be well, Bon
Good Morning Lea, this is Bon still not sure how this site works. I have been so busy learning about my 'condition' that I haven't been able to spend enough time perusing it. I REALLY want to connect with the Seattle group but am not getting a response from the contact. Not sure why. Eventually I would like to start a group North of Seattle from say....Millcreek to Standwood or Arlington. I am in the process of learning about alternative treatments (naturopath) is trying LDN and LDA very interesting possibilities! Faux hair of course, nothing new to me as I was a hairdresser and have loved faux hair since then. I have 9 wigs of various colors and styles, fun. Problem is as I lose hair my scalp is so tender! Am looking to have them retrofitted with silicon around hair line. They are Jon Renau....around $300 with tax? If you have any suggestions re: Thank you for friending me, Bon
Hi Lea, that you for your reply. It is my 7 year old granddaughter who has been recently diagnosed My daughter has several questions and wanted to attend a event while she is here. You see they live in Dubai, she comes once a year to stay with me for a few weeks.They will be here next month for only 16 days. I want to give them all the help and support that I can, but thats hard when they live so far away. So I have been doing my own research , reading post and learning so much from kind people like you and others in this group. She has ask me if I can find a Allergist in our area, Tacoma/Seattle. She has taken my granddaughter to two Derm doctors already there, but wants her to get checked out here in the states. Do you know of any? Also thank you for telling me about the up-coming meet up, but they dont arrive till August 9th . Thank you for your help.
There are a number of groups in Portland. On Alopecia World, there are two you can join: Active Alopecians in Portland, and Pacific Northwest Alopecians. NAAF lists this support group here in Portland: Denise Clopton/Brooke Ferguson 503.804.5315. I can't find the contact information on the group I have met with in the past! Sorry, I will try to find it for you.
And thanks for wanting to read my book! Let me know how you like it.
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