leah
  • Female
  • Tacoma, WA
  • United States
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Latest Activity

leah replied to babashanti's discussion Olumiant and what to ask my doctor?
Mar 7
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"hi again I was checking out the RX URl and found the following:  1-844-OLUMIANT 1-844-658-6426 Lily the maker might know of dr in Germany etc. Also they have this program " A Companion in Care will give you a welcome call to talk about how…"
Mar 7
Baldielocks and leah are now friends
Feb 21
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
" babashanti I hear you with wait and hope time cango quick for you. Thanks for the update. best (ps summer will be here Soon =) )"
Feb 20
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"Thanks Babashanti. Also have you seen this discussion on this site "OLUMIANT Alopecia Community Watch – The Good, The Bad and The Ugly!" maybe have some tips…"
Feb 12
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"Ps have you seen if there any specific groups in Germany that maybe have folsk that have derm recommendation too, just a thought. "
Feb 7
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"Sorry to hear Judith, I hope heal quickly from all. And lumps turn out to not be anything serious. Good thoughts your way!"
Feb 7
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"thanks for update, sorry hear about the 1 dr. that's good resilent and good a quick cancelation with another. I found some dr you can sometimes email too. Please keep us posted. "
Feb 7
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"interesting, thanks!"
Feb 7
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"please note with Rogain if breast feeding thinking getting pregrant are or gettting some pregrant there are risks with Minoxidil (Rogaine). maybe note related to you, just wanted to note cause had an accaiantance tell me about and them found…"
Feb 7
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"PS They say cover what questions to ask doctor, sorry thought had screenshot the info page. If can make it they make a vid available online after too"
Feb 7
leah liked babashanti's discussion Olumiant and what to ask my doctor?
Feb 7
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"Hi / halo ) These webnairs might have helpful information. I think it might good to check on costs, something have been prescribive very expensive and follow with specialists and if have get blood tests, etc special monitoring. In addition, if they…"
Feb 7
leah commented on Cheryl, Co-founder's event CANAAF Come Together Conference
"Cheryl have you ever gone to the Canadian confrence? Thanks"
Feb 7
leah might attend Cheryl, Co-founder's event
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CANAAF Come Together Conference at Crowne Plaza Hotel

July 21, 2023 to July 23, 2023
Canadian Alopecia Areata Foundation (CANAAF) Annual Conference July 21-23, 2023Crowne Plaza Hotel, Niagara Falls, OntarioCANAAF’s COME TOGETHER Conference is Canada’s largest support and awareness event for families impacted by Alopecia Areata.Every summer, CANAAF holds the COME TOGETHER Conference, a National Awareness Event in Ontario. This weekend-long conference will connect you with a network of others who understand the challenges of alopecia areata. It is an opportunity to exchange ideas…See More
Feb 7
leah liked Cheryl, Co-founder's event NAAF Annual Patient Conference
Feb 7

Profile Information

Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (8 comments)

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At 6:14pm on February 25, 2020, Bon said…

Hi Lea, I'm sorry I've been so dangned busy.....yesterday my naturopath gave me my first LAI injection....the LDN seems to have slowed the shedding of what I have left of hair, but left upper eyelash, outer edge of right eyebrow and nails are being affected that latter 3 in last 2 weeks! Anyway, where do I find your number to get in touch through texts or calls?  I have 3 new sites I'm learning to navigate and just created a FB account, which I wanted to avoid, but they all use it. Please advise and THANK YOU for being there, you've no idea how much it means. I am not freaking out over this but I do want to do everything I can to arrest the 'issue'.  Be well, Bon

At 9:25am on February 20, 2020, Bon said…

Good Morning Lea, this is Bon still not sure how this site works.  I have been so busy learning about my 'condition' that I haven't been able to spend enough time perusing it.  I REALLY want to connect with the Seattle group but am not getting a response from the contact.  Not sure why. Eventually I would like to start a group North of Seattle from say....Millcreek to  Standwood or Arlington. I am in the process of learning about alternative treatments (naturopath) is trying LDN and LDA very interesting possibilities! Faux hair of course, nothing new to me as I was a hairdresser and have loved faux hair since then. I have 9 wigs of various colors and styles, fun. Problem is as I lose hair my scalp is so tender! Am looking to have them retrofitted with silicon around hair line.  They are Jon Renau....around $300 with tax?  If you have any suggestions re: Thank you for friending me,  Bon 

At 9:01pm on August 10, 2017, Madbrown said…
I mean I am fine with going to the Seattle one to start.
At 8:27pm on August 10, 2017, Madbrown said…
I am fine with trying to setup something down here if there are people in the area that would want to. I can definitely do Seattle area also to start. Where would the Seattle one be at?
At 3:20pm on July 25, 2017, ayshia2000 said…

Hi Lea, that you for your reply. It is my 7 year old granddaughter who has been recently diagnosed My daughter has several questions and wanted to attend a event  while she is here. You see they live in Dubai, she comes once a year to stay with me for a few weeks.They will be here next month  for only 16 days. I want to give them all the help and support that I can, but thats hard when they live so far away. So I have been doing my own research , reading post and learning so much from kind people like you and others in this group. She has ask me if I can find a Allergist in our area, Tacoma/Seattle. She has taken my granddaughter to two Derm doctors already there, but wants her to get checked out here in the states. Do you know of any? Also thank you for telling me about the up-coming meet up, but they dont arrive till August 9th . Thank you  for your help.

At 2:13am on June 11, 2014, LeslieAnn Butler said…

There are a number of groups in Portland. On Alopecia World, there are two you can join: Active Alopecians in Portland, and Pacific Northwest Alopecians. NAAF lists this support group here in Portland: Denise Clopton/Brooke Ferguson
503.804.5315.  I can't find the contact information on the group I have met with in the past! Sorry, I will try to find it for you.

And thanks for wanting to read my book! Let me know how you like it.

 

At 1:02pm on June 5, 2014, LeslieAnn Butler said…

Hey thanks, let me know how you like the book. And yes, there is a meetup group in Portland. Do you go to one in Seatte?

At 5:31pm on December 12, 2012, LeslieAnn Butler said…

Hello and welcome, Lea!
How are you today?
Leslie Ann

 
 
 

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