Active hair loss with recent LPP diagnosis - feeling very overwhelmed and hopeless

I started noticing some thinning about a year ago and thought it was thyroid related and temporary.  Since then it's progressed significantly and has been a rough few months.  My hair is continuously falling out & I've been told it won't come back. I've been diagnosed with LPP after 3 biopsies and am currently on plaquenil and cellcept as well as topical eladil & tacrolimus.  I had my first excimer laser treatment a week ago.  The laser was fine but the after effects were quite severe.  I'm wondering if they had the correct settings.  The doctors don't really seem to know how to best treat this.  In the meantime, my balding is worsening and I'm sinking into depression.  I have 3 small-ish children and work full-time in a career with heavy responsibility.  And I can't help but wonder how I got here... and at the same time I'm aware that stress worsens the hair loss and so I'm stressed about my extensive permanent hair loss and I'm stressed about not being stressed...

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Replies to This Discussion

 I know exactly how you feel. I have also been diagnosed with LPP couple of months back. Have been loosing hair since last one and half year, have big bald spots on top of head and small spots all over head. I am taking plaquenil since a month.  Was applying steroid solution twice a day but started giving me very bad headache so just stopped few days back. Am seeing the doctor again tomorrow and wanted to know what kind of effects you had from the laser in case he suggest it tomorrow.

Hang in there, the feeling has to get better with time as we get more and more used and accept the condition. 

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