Cicatricial (scarring) Alopecia Discussions (17)

← Back to Cicatricial (scarring) Alopecia
Discussions Replies Latest Activity

Scarring alopecia (Lichen Planus Pilar)

Hello. I have LPL for many years. I live with the continued loss of hair that gradually increases. I tried treatment with hydroxychloroqui…

Started by Carlos Alberto Sobrinho

4 Aug 24
Reply by Carlos Alberto Sobrinho

LPP Survivor

I found out that I had LPP after suffering with scalp itchiness and a series of soft, mushy lines across the top of my scalp for 5 months. …

Started by cyclek

2 Jan 9, 2018
Reply by Carlos Alberto Sobrinho

Active hair loss with recent LPP diagnosis - feeling very overwhelmed and hopeless

I started noticing some thinning about a year ago and thought it was thyroid related and temporary.  Since then it's progressed significant…

Started by Eliz

1 Oct 16, 2017
Reply by shasha21

Recently diagnosed, have lots of ???, and considering various treatment options

I was recently diagnosed with scarring alopecia- LPP. Since I'm new to the game, I've done as much research as I can and have read nearly e…

Started by HappyMommyJ

2 Nov 25, 2016
Reply by Kathy in Denver

Blood samples needed for FFA research

Guys hosputal in London need blood samples from people diagnosed with FFA for DNA research. The research clinic is open on Wednesdays. If y…

Started by Debs

1 Mar 30, 2016
Reply by Debs

Shaving my head

I have folliculitis decalvans and I recently shaved my head, my scalp was left very scarred and disfigured from the FD. Is there any way to…

Started by Blair

2 Oct 13, 2015
Reply by Veronicasteele

Support Group for Cicatricial Alopecia patients - PITTSBURGH, PA - Join us!

Along with Dr. English, I am hosting a support group meeting on August 27th from 6-8 PM.  The address is UPMC Dermatology, 9000 Brooktree R…

Started by Lo

0 Jul 10, 2015

Early stages...need help!

Hey I'm amanda. I was Recently diagnosed with CCCA (scarring alopecia -in the early stages) just wondering if there's any one in this group…

Started by MandaDeuce

7 Jul 20, 2014
Reply by MandaDeuce

CARF - New London Patient Support Group

CARF (the USA based cicatrical alopecia research foundation) is holding its very first London, United Kingdom, patient support group. Sat 1…

Started by Debs

0 Oct 31, 2013

Anyone tried Dermovate?

HiJust wondering if anyone had tried Dermovate Scalp Application (clobetasol propionate), and what happened?Thanks !Rosie x

Started by Rosie

5 Mar 13, 2013
Reply by chris for hair



Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2023   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service