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Recently diagnosed, have lots of ???, and considering various treatment options
I was recently diagnosed with scarring alopecia- LPP. Since I'm new to the game, I've done as much research as I can and have read nearly everything on the internet.
The treatment plan I have decided on consists of injected and topical steroids as well as trying a holistic approach including supplementation as well as a massive change to my diet (eliminating gluten). I'm also using a special shampoo and taking hair strengthening vitamins in an attempt to keep the hair I have as healthy and full as possible (though I'm pretty skeptical they will do any good...)
I'm curious to know if any of you have tried a similar strategy?
Given that the typical medications prescribed for scarring alopecia have such harsh side affects combined with the fact there is no guarantee of success, at this point, I've opted to steer clear. My derm is supportive of me working with a naturopath on alternative treatments before considering Miocin or Paquenil.
Although my hair loss is evident, its still able to be covered up. Mainly, I'm concerned how much more I'll lose. Does anyone know of patients with LPP who lose ALL their hair or know the extent of hair loss one can expect with LPP.
I know I may be grasping at straws but I would love any help/support/feedback you can offer. :-)
Replies to This Discussion
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Permalink Reply by Chris on
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I was diagnosed a year ago with scarring alopecia. Said it was caused from stress. They put me on Clobetasol Propionate Topical Solution. I used it for 4 months. Hair has stopped breaking and falling out. I had side affects that developed after I quit using it. I take Hair, Skin and nail supplement. Also using essential oil on scalp. Wondered if Rogaine for women would help. I have bald spot on top area and on right side plus a couple small spots on back of head. Letting bangs grow out to help cover hair loss on right side. I wear a wig when I go out. My hair loss might not have been as bad if I had been able to get into doctor but it took 3 mos. My doctor has retired and I was left with Physicians Assistant. I had had some blisters developed which she did a biopsy on. Said weren't cancer. Said 1 spot looked like shingles but I didn't even know it was there unless I bumped it and then it would itch. No pain. This all started after I had been off medicine. Used Neosporin and a Avon Cream which has cleared. Did internet search on side effects of med. and found other people that same problems I did. If you find anything to help get hair to grow please let me know.
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I am new to the diagnosis and came upon your post. I see it is a bit dated but hoping you are still out there. I have the same questions you do and would love to hear what you have learned in the past few months.
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