Hello. I have LPL for many years. I live with the continued loss of hair that gradually increases. I tried treatment with hydroxychloroquine and trocolimus lotion to try to stop the fall for a year. I am now trying local applications of PRP with cortisone on the scalp. I had the first application in August of this year. I'm going to make three more monthly applications and see if there's any changes. I would like to see this group reactivated, with the more active participation of the members, in the perspective of their treatment experience and new scientific discoveries about scarring alopecia.Thanks.
I also have also been diagnosed with LPL; it's been over 20 years now. Still have hope that one day, the scientific community will find a cure for this specific type of alopecia.
I think it's a great idea to try to reactivate this group; we need all the support, information, testimony, knowledge,..., that we can get.
I recently had a biopsy to check whether the inflammation was still active. The affected area represents about 50% of my scalp; I was also thinking of trying the PRP; however, my doctor thought it was not a great idea. She suggests I contact an implant specialist, but she's still hesistant as the affected area is large.
I hope that one day we'll get a cure through stem cells.
Please let us know how the PRP applications work.