Scarring alopecia (Lichen Planus Pilar)

Hello. I have LPL for many years. I live with the continued loss of hair that gradually increases. I tried treatment with hydroxychloroquine and trocolimus lotion to try to stop the fall for a year. I am now trying local applications of PRP with cortisone on the scalp. I had the first application in August of this year. I'm going to make three more monthly applications and see if there's any changes. I would like to see this group reactivated, with the more active participation of the members, in the perspective of their treatment experience and new scientific discoveries about scarring alopecia.Thanks.

Views: 77

Replies to This Discussion

Permalink Reply by Nana on September 6, 2022 at 8:20am

Hi, 

I also have also been diagnosed with LPL; it's been over 20 years now. Still have hope that one day, the scientific community will find a cure for this specific type of alopecia. 

I think it's a great idea to try to reactivate this group; we need all the support, information, testimony, knowledge,..., that we can get. 

I recently had a biopsy to check whether the inflammation was still active. The affected area represents about 50%  of my scalp; I was also thinking of trying the PRP; however, my doctor thought it was not a great idea. She suggests I contact an implant specialist, but she's still hesistant as the affected area is large. 

I hope that one day we'll get a cure through stem cells. 

Please let us know how the PRP applications work. 

Best, 

Nana

Permalink Reply by Chrissy on August 23, 2023 at 11:59pm

I spent $4000. On PRP with no results,  listen to your dr,  spoke 2 weeks ago to transplant and it still is not in the cards for us yet

I pray that some day we will get somewhere with this!  
Regards,

Chrissy

Permalink Reply by Chrissy on August 23, 2023 at 11:55pm

Hi I was diagnosed in December with Cicatricial alopecia .  My dr started me on 100 mg of doxycycline 2x day with ketamine injections every 6 weeks.  Along with clobetiisol liquid on my scalp daily.  Now after 6 +mons. I have developed Drug induced Lupis to go along with everything else and my hair is falling out faster now than it had in the past.  Of course I am a sun safe worshiper and now can’t go out into the sun with out being majorly covered,  I am so depressed it always seems like 1 step forward and 3 steps back!

Permalink Reply by Carlos Alberto Sobrinho on August 24, 2023 at 1:06am

Don't be discouraged. You have a life ahead of you and a lot of good things to do.

 I received word that Dr. Shapiro, a renowned specialist, had success with a patient, testing PRP with Naltrexone 3 mg. It is a case of verification, as I did not have access to the publication of the study. It can be found at

https://jddonline.com/articles/novel-treatment-using-low-dose-naltr...

If anyone can access the article please send it to us.

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service