Hi everyone I’m looking for help please we are in New Zealand our doctors say there is no treatment I need help my daughter is only 19 and has had a patch now she had a lot

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 i am truly very sorry.

It is a disease. There is no cure.  however, there is also the fact that it is different for everyone. One person could have all of their hair come back because that is the course of the disease for them. Another may lose every single hair on their body and it never comes back anywhere. There is no way to know how it will affect any individual  going forward. We have all had our own individual journeys.

Some people have had luck with xeljanz, but it is extremely expensive and very few people can afford it. Not sure if you can get it from other countries for cheaper. I never really explored it  after my doctor told me it was prescribed only for rheumatoid arthritis here in the United States. 

 I know this disease can be devastating, heartbreaking, painful, just horrible! But I promise you it’s not so bad after you get used to it, which takes about two years.  You may need professional help psychologically dealing with it in the meantime. This site can offer  encourqgement, help and guidance but we are not professionals. 

 ultimately, it is the realization that life is who you are on the inside. That’s all that matters. But at first I had to constantly read several different mantras that helped me stay positive.

 One last thing, I have since wondered if medically assisted fasting would have caused it to reverse when it first started. Just a thought.  

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