Replies to This Discussion

Permalink Reply by Lo on July 4, 2015 at 12:09pm

Great support and info. offered on that site. And a list of all upcoming support groups and locations. Anyone near Pittsburgh... I am hosting one with Dr. English on August 27th. Hope you can come.

Permalink Reply by Wyobalance on July 5, 2015 at 11:14pm

I was asked to post another CARF FFA/Cicatricial Alopecia support group held in San Francisco.  It will be this Tuesday, July 7, from 7:30-9:30 pm at Kaiser's Jade Room. Vera Price MD is the attending advisor

Permalink Reply by MnM on July 6, 2015 at 1:56pm

I attended my first support group meeting in Chicago a few weeks ago. I found it to be very helpful and will go back.

Permalink Reply by Wyobalance on July 6, 2015 at 5:20pm

Was it a CARF sponsored group.  If so, good to hear.  We are trying to get the word out to others.  Glad it was helpful for you and you are going back.

Permalink Reply by MnM on July 6, 2015 at 7:57pm

Yes, it was CARF sponsored. I thought about going to one for about a year before I actually worked up the nerve to go. Not sure what I was scared about, but I'm glad I finally went!

Permalink Reply by Wyobalance on July 6, 2015 at 10:59pm

I understand being scared.  I am so glad you have a support group nearby, as many are out there feeling all alone.  Did you by chance know about/attend the CARF patient/doctor conference held in Chicago last year?

Permalink Reply by MnM on July 7, 2015 at 4:35pm

No I didn't, I wasn't aware of CARF at the time. It would be great if more dermatologists gave out CARF info after giving an FFA diagnosis.

Permalink Reply by Wyobalance on July 7, 2015 at 8:34pm

True, true.  A few derms do, many don't.  Hopefully you are able to go to the next CARF conference next June.