Hi all.

I am a regular reader sometimes commenter here.  

I am 45 living in Adelaide, Australia.  I was officially diagnosed last year after about a year or two of symptoms.  Like many of you I had vague things going on which I now realise was FFA.  My eyebrows started getting little bald patches and then after working out it wasn't my imagination and maybe some of my hairline was changing pushed it harder with my doctor.

My derm took one look at me and knew straight away.  I also get dry skin on my eye lids, the creepy itchy feeling on my hair line and sometimes a itchy face. My eyebrows (what's left) get itchy.  My nose and cheeks are red/flushed now as well.  

My hair loss so far has been about 2 cm on the hair line only really noticeable to me because I look at it all the time!  My hair breaks easily and has thinned.  I am an anxious person with a history of depression and my thyroid I think is slowing petering out.....

The main reason for this post was to let you know about my dermatologist appointment.  I was on Planquinil for a year and it made no difference to me. I was expecting the appointment to be nothing new but my dermatologist suggested we go on another drug.  She wants to go hard to see if we can slow things down.  I am now starting on Mycophenolate mofetil (MMF).  Which is an anti-rejection immunosuppressive drug for organ transplant.  She also saw my notes on the forum and today I started taking Finasteride as well.

Has anyone else taken MMF?  

FFA is a bit soul destroying but I am trying to come to terms with it.  Like many of you I see thinning hair, no eyebrows and realise it's more common than I think.  I have to laugh because where my hair has broken off and trying to grow back (before the follicle closes up completely) it grows back curly.  Oh how I always wanted curly hair!  Just not sad little sparse ones on my hairline *rolls eyes*.

Love reading the forum, as it makes me feel less alone with this disease.  Though I wish we all didn't have it.