Results of Research at Guys Hospital for FFA, any results??

Hello Everyone

I saw my Consultant last week, she said that the dermatology community were looking forward to the FFA results at Guys as something has been found. She didn't know any detail as yet

Does anyone know how the results will be disseminated?

I made a decision to stop the Hydroxychloriquine as well. Looking back at photos I have had FFA for a couple of years prior to diagnosis and hope it has burned out, at least for now

Hope everyone is well

Mary 

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Replies to This Discussion

Permalink Reply by illustr8r on October 15, 2017 at 12:06pm
I did Google searches but the results were nothing current. You’ll have to keep asking your doctor about it and let us know what you find out.
Permalink Reply by Airam-FFA on October 15, 2017 at 5:12pm
Hi Mary

I understand that they are presently working to validate the results of the research.

Like you I am very eager to learn of their findings.

Hopefully, it will not be too much longer.

xOx

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