side effects

HI ladies,


First of all, this site is great. It helps me to know I have support, even if its bitter sweet, as I wouldn't wish this suffering to anyone else. 

I have noticed some recurring changes in my body when I have a flair ups and I wanted to check if any of you had the same symptoms.

I have periods where I'm calm, my roots aren't inflamed, I have energy and I'm feeling great. And then I have relapses and there are my symptoms.

- red and itchy scalp.

- extreme fatigue

- feeling of edginess and restlessness/short fused

- feeling of mild confusion

- chronic heat flashes

- restless nights

- chronic and increasingly annoying yeast infections. No one has ever spoken about this and for me, this is how i know its coming..

Anyone else have similar symptoms?

Also anyone care to share a successful diet that helps inflammation?

Thank you for your support, I hope to contribute in a positive supportive light to all of you as well,

Erika B.

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Replies to This Discussion

Permalink Reply by Mildred on June 22, 2018 at 11:05am

I do get hot often.  In fact I have my fan on at work all day everyday even in the winter. I sometimes perspire profusely from my hairline when that was never an issue before. The itching can be bad.  I also have severe itching in various places on my body, but for me. primarily under my chin and chest.  I have no rash or bumps, but it is maddening sometimes.  I wonder if other people with FFA have that kind of itching.  (I also have (LPP).  I also become extremely tired sometimes to the point where I feel like I will die if I I make one more movement.  I do not have yeast infections. 

There are foods that are supposed to combat inflammation.  Aveda makes a scalp revitalizer called Invati with turmeric in it.  I spray that on if I'm particularly itchy and it works like an aspirin.  Temporary relief.

Permalink Reply by illustr8r on June 23, 2018 at 10:07pm

Hi EricaB. Have you had your vitamin B12 checked? During my last flare my family dr ran a bunch of tests and discovered I had a severe vitamin B12 deficiency. Why? Who knows, I’m not a vegetarian. Just another weird thing I’ve had to deal with. Lack of B12 causes itchiness which I had terribly and leads to fatigue and mood swings. I had to get B12 shots for 4 months and now I take 1000 mg a day in tab form. I feel so much better! Itchiness is under control and I have energy again.

For itchiness year Sarna lotion and/or Benadryl or Zyrtec.

Its the most frustrating condition. This group has been a lifesaver! ((Hugs))

Permalink Reply by Halfbakedwho on June 25, 2018 at 4:57pm

Hi,

I am getting very sweaty hot flashes at night. They had calmed down but now are baaaaack...

 I don't necessarily sweat from my hairline, but just sweat. 

I think I have a B12 deficiency as well. I have been very tired. I try to work out anyway, but the tiredness is really a pain, and feeling sort of vague and woozy - I even had a headache the other day and I'm not a headache person. I should get this checked out, but I'm sick of my hair and checking myself out... 

I am in denial mode, one of my favorite modes, but okay I will go to the doctor. 

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