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Permalink Reply by imrjl on April 3, 2016 at 3:24am

I have stopped using all sunscreens since I read the article. I have used a daily moisturiser with spf15 for 10 years followed by daily use of spf50 for about 4 years before developing FFA... Would be interested to hear about which creams everyone is using?

Permalink Reply by PJ - MN, USA on April 4, 2016 at 8:16pm

I to think if it were sunscreen there would be a lot more women with this issue. But yet I also wonder if our genetic make up makes us more sensitive and we react differently to things than others. I do remembers when I first noticed my hairless was on my legs after using the Nads Hair Remover product. I remember first doing a test strip to see if I would react to it with my sensitive skin. That area never grew hair back. Anyone else use that product?

Permalink Reply by sallylwess on April 4, 2016 at 8:38pm

I won't be using the products anymore. I actually have been getting away from using such products lately.  I don't think that is the only factor in FFA and LLP or we would see a lot more women with the condition.  I think, as I have said before, that it takes the perfect storm that comes together for many of us with sensitivities for the condition to occur.  I am more careful about the chemicals I use on my skin and hair.  

Permalink Reply by Mel on April 4, 2016 at 10:07pm

Saw an article in the NYT today about Gwyneth Paltrow and her beauty habits. Turns out it mentioned Juice Beauty, which is what I use, and her belief that you should steer clear of "chemical" sunscreens. I looked at my BB cream and the SPF is zinc oxide. Then I found this: "The term 'chemical-free sunscreens' is commonly used to describe 'physical' or 'mineral' sunscreens, those that use the minerals zinc oxide and/or titanium dioxide as their only active ingredients. Apparently with zinc oxide there is no chemical reaction at the skin level. For whatever that's worth.
Here's the NYT article just FYI
http://www.nytimes.com/2016/04/07/fashion/gwyneth-paltrow-juice-bea...

Permalink Reply by Nancy on April 11, 2016 at 8:15am

This research opened my eyes to the impact all products may have on FFA and other diseases. I have been using an eye cream and a skin conditioner with SPF daily, every day, for decades. Because it is a product developed by a doctor, I assumed it was safe. It protected my skin and I loved it. I have recently been diagnosed with FFA, but hair loss, first on my legs, began many years ago. I've lost my eyebrows and significant hair loss at my temples.I have stopped using my SPF creams and am looking for alternative sunscreens without the chemicals used as sunscreens in my former product. I also have a history of rosacea and fit the FFA profile as described in this study. 

As a result of this article I discovered a wonderful research/advocacy organization that reveals the safety level of all ingredients and rates tens of thousands of products. They have an app that can go on your iPhone that enables you to scan the bar code of products before you purchase them. They have done remarkable research on beauty products, cleaning products, food, etc. Check it out here, Environmental Working Group:   ewg.org.

Here is the Skin Deep Cosmetic Database.  http://www.ewg.org/skindeep/

My trusted skincare product rated a 6 with 8 being the worst and 1 being the safest. I am moving to all products rated 1 or 2. This database provides the information needed to make product selections.

Many thanks for the heads-up on this research.

Permalink Reply by ammie on April 12, 2016 at 9:51am

This is fantastic! Thanks for sharing this great resource. 

Permalink Reply by Mel on April 11, 2016 at 12:45pm

Nancy, thank you for a heads up on that app. I have referred to that site for a few years but did not know about the app. I have been switching my products over for several years, even before the diagnosis. Even if these things don't cause it I am certain they only aggravate inflammation and can't be good for people. Endocrin disrupters are in lotions, makeup, plastic wraps, etc. I switched to all glass food storage, too. Household cleaners also emit bad stuff that gets into our indoor air. Toxins. I am considering tackling that next. There's a new place near me that sells more natural cleaners and you refill your container over and over so no plastic waste. I switched my laundry detergent and dryer sheets, too. Good to consider all chemical exposures.

Permalink Reply by Nancy on April 11, 2016 at 4:25pm

Mel, glad this is helpful to you. This has become my favorite app. This site is helpful in all the areas you mentioned and I am going to do all that you suggested.

Permalink Reply by Mel on April 11, 2016 at 12:51pm

I looked up Juice Beauty tinted moisturizer with SPF 30 and it gets a #1 rating so , while I am always skeptical, good to know ... I'm going to use this app a lot.

Permalink Reply by Bill_Andrews on April 7, 2021 at 10:06am

A very unpleasant situation happened to me, when I went to sea I used a sunscreen, after which my skin turned red, and I started to feel very bad. It was found that the sunscreen had some toxic substances, and then the dermatologist advised me more not to use such thing. He told me that in most cases these sunscreens can lead to skin cancer. Since then I only use natural creams, which I order here https://www.nhc.com/brand/andalou-naturals. They have been tested and contain only natural components, in addition they have a good price.

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