I haven't been on here much since I gave birth to my first child. My hair loss has been incredibly slow so I put off going to see a doctor. The first dermatologist I saw before I was pregnant (18 months ago) thought I had alopecia areata and began giving me topical treatments without doing a biopsy. 

I went for a second opinion today and the doctor took one look at my scalp and told me it is scarring alopecia. She did a biopsy and said I should get the results in two weeks. She said she thinks the disease may be dormant because she didn't notice any inflammation or redness. But redness and itching are not symptoms I have ever experienced. I did tell her I sometimes get the sensation that ants are crawling over my scalp. 

I started noticing the hair loss around age 37. I am now 39. The doctor said we will talk about treatment once the biopsy comes back and that she might refer me to another specialist but warned me that that doctor is in high demand and it is hard to get appointment with her. 

I have really mixed feelings right now. I am upset that my hair loss is permanent and that it is what I suspected it to be but I am sort of revealed that I finally found a doctor who wants to know for sure. I will keep you all posted when I get my results. 

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  I'm happy for you that if it does turn out to be FFA, it appears to be dormant and it doesn't sound like you've lost a lot.   Yes, please keep us posted.  All the best to you Ammie. :)

Thank you, TrayG. I had a really low hairline so it's hard to tell but my sideburns are gone and my widow's peak is gone. I can cover it pretty well but I can no longer wear my hair up like I used to. I guess the bright side is I am almost 40 and have lines on my forehead that I should probably cover anyway. ;) 

My sideburns and widow's peak are gone as well...makes me sad when I see my hair up in a towel after the shower and there is no hair coming out like there used to be.  I, too, can't where my hair up anymore (although I do to exercise still and try to hide it as best I can).   I guess having curly hair helps to a certain degree.  We just have to try and stay positive.  Some days that's a struggle, but that's why we have this support :)

100 percent agree! My hair is curly too and it does help. My remaining hair is still pretty thick so I am grateful for that. Hand bands help too. 

Hi, I also have FFA although my 2nd dermatologist said he thought it was LPP, which is still about the same. MIne started about 4 years ago and seems to have mostly slowed down. My derm has me on Methotrexate to help control inflammation on my scalp, but it usually doesn't itch much. I've lost most of my sideburns and all along the front of my head, except for a line of hair that is still at the front of my scalp, and then goes bald back about 2 inches. I miss wearing my hair back and wear it now with bangs. I also use headbands to hold my hair down and cover the bald areas , especially when outside in windy conditions. Or wear a hat. I've pretty much gotten use to it, but still hate that I can't have my hair the way I want, and I always worry about if the bald patches are showing.

Results came back that I have lichen planopilaris with moderate inflammation. I don't how any signs of inflammation showing on the scalp but I never have. It was sad news but I expected it. Now I am just going to focus on keeping the hair I have. 

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