Long Islanders with Alopecia

Information

Long Islanders with Alopecia

Here is a place for Long Islanders to connect.

Members: 13
Latest Activity: Apr 14, 2013

Discussion Forum

Meeting?

Started by Eric W. Nov 15, 2009. 0 Replies

What are some of your thoughts about having a meeting among us Long Islanders? What would you want to do? What would you excpect to get out of a meeting?

Comment Wall

Comment

You need to be a member of Long Islanders with Alopecia to add comments!

Comment by soniamarry on November 9, 2010 at 3:24pm
Hey guys,
I am not from long island, but you guyd are not that far from me! Plus, i wanted to offer my support to all! :)
Comment by Kathleen on January 31, 2010 at 7:25pm
Are any of the women in the group attending "Bald Girls Do Lunch" in NYC on Feb 10th?
Comment by JeffreySF on December 30, 2009 at 2:59am
Happy New Year!!!

Jeffrey
Comment by Maureen on December 27, 2009 at 3:46pm
Hey Margaret, I'll be there! can't wait to meet you!!!
Comment by margaret staib on December 22, 2009 at 7:24am
Just a reminder first meeting Jan 11th at 7-9 Harborfields Library. Support group through NAAF. hope to see you there!
Comment by Kathleen on December 8, 2009 at 8:58pm
Thank you for starting this group! I have searched online for a support group. I tried SNCH since they have a support group for practically everything. Keep me posted on meeting.
Comment by JeffreySF on November 16, 2009 at 12:26pm
I might just have to join you all.
Don't think I wont....
Comment by margaret staib on November 15, 2009 at 9:55pm
Thanks Jeffrey! I hope we can write back and tell you how our first meeting goes!!!
Comment by JeffreySF on November 15, 2009 at 8:32pm
Hey Gang,

I joined your group even though I'm not a local...
Our NAAF Support Group meets every other month with the summer off.
We meet at Kaiser Hospital in a meeting room they have donated to the group.
We generally start with welcoming new members and have a go around the table with everyone able to share their story. We are lucky to always have Dr Vera Price (one of the NAAF Founders) and/or one of her Fellows (MD's) present for medical Q & A. Then the group sorta just talks about whatever they feel like. Our meeting usually goes 2-2 1/2 hours.
A group of us always meets before the Support Group Meeting for Pizza.

So there's my input.

Jeffrey
Comment by Maureen on November 15, 2009 at 8:06pm
Hi Eric, I been to one up in Rochester last year The leader there that meeting was able to get a dermatologist came to speak and answer questions the 1st part than you go around and each person introduces themselves and tell about there experience with AA, AT and AU. people offer suggestions, much like this sight but in person.
 

Members (12)

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service