Replies to This Discussion

Permalink Reply by MummyWendy on April 7, 2014 at 6:21pm

I'm a mum of an 8 year old girl with alopecia., Would love to know if there are any others in a similar situation locally? 

Permalink Reply by SophieG on May 10, 2014 at 1:35am

Hey I am in Wellington as well...if there is a catch up/ meet and greet i will come :)

Permalink Reply by twig on November 23, 2014 at 3:08am

Was there ever a catch up? I would love to join... recently diagnosed, struggling a little.

Permalink Reply by SophieG on November 23, 2014 at 3:13am

Hi twig

There are a few of us in wellington that meet regularly. If you friend me I can give you more details. Look forward to talking to you soon!

Permalink Reply by twig on November 23, 2014 at 3:16am

Added! Currently in Palmy for a short term placement but would love to join the group some time when I'm back in Wellington. :)

Permalink Reply by SophieG on November 23, 2014 at 3:28am

Awesome! I'll private message you! Next time we're meeting up is in the new year!

Permalink Reply by Lexie on April 16, 2015 at 12:29am

Hey Kim, nice to meet you. how are you doing? I live in Welly :)

Permalink Reply by MummyWendy on April 16, 2015 at 1:24am

Hi Kim, my daughter has alopecia and we are also in Wellington. There are a few of us who meet up regularly. Hope you're managing ok with the "journey"?!

Permalink Reply by twig on April 16, 2015 at 3:43pm

Me too! In Newtown if you wanted to catch up :-)

Permalink Reply by MummyWendy on May 18, 2015 at 9:55pm

Hi Kim 

I can just picture you clutching your hair in the wind :) If it helps you feel better, my daughter was competing in a Gymnastics comp recently and her hair flew off in the middle of her bar routine! 

You asked about meeting up with others in Wellington. We have a small social group called Wellopecia, for people with alopecia and their families. We meet up roughly 4 times per year, and it's more of a fun, social, support group rather than anything too formal or official, eg we've been bowling, and to Te Papa recently. If you'd like to come along to one of our get-togethers, email us at alopeciawellington@gmail.com . We are a mixed bunch of children and adults of all ages and would love to welcome more people into our group! 

Wendy