Comment

Comment by Hilary on October 6, 2013 at 4:22pm

Hey I'm on the alopecia aotearoa crew thing I hope to see you all there and just remember its never too late to register xx

Comment by PaulJ on October 1, 2013 at 4:15pm

I know of about 20 people from my contacts who say they are going and from the impression I get from the organisers is that it is going to be a very good turn out.

Comment by Bex Weller on September 30, 2013 at 11:47pm

Great thoughts Paul!!
I believe if we share the load it'll be easier to get things done, as by ourselves there are soo many things in life demanding our attention! I'm with Struth, how many of us are signed up so far?

Comment by Struth on September 30, 2013 at 10:39pm

Are any of the Hamilton gig organisers on here - wondering what the number of attendees is currently looking at please? Thx.

Comment by PaulJ on September 30, 2013 at 10:34pm

My childhood\teen years were not pleasant at times so I always find it hard to fit my experiences into modern thinking (If that make sense).

To be honest people just need to talk about it - To those with Alopecia or a counselor. I prefer the former as its usually free and the other person actually understands what you are going through which is why support groups are fantastic. I'm not knocking the medical\holistic profession but sometimes you just need someone who has had the same experiences and not simply get 'labelled' as something. But people need to take whatever help they need so along as it isn't alcohol or drugs then it has to be a positive thing !

Comment by Ginny on September 30, 2013 at 10:03pm

The list you gave Paul is a great one it's going to help me when I compile a local brochure for the medical profession to use/ One thing I need to add is counselling. I found I needed it six year down the track. I thought I had dealt with it on my own but there was still some issues I hadn't faced. What have you found?

Comment by PaulJ on September 30, 2013 at 8:20pm

More money for wigs\scarves.
More support groups\events. Everywhere :)
Better info for newly diagnosed. How ?
Better awareness.
Continuity. Like most things people are keen at the time and then real life takes over. My own attempts have been blight with earthquakes, illness, work, travel.

The most frequent requests I get are :
Support ? There is only FB, AW and the odd coffee meetup.
Help ? Coping, help for sufferers and families - We all know its hard.
Cure ? None.

If been running my sites now for maybe two years - I had so many plans but few of them came to anything relevant. Thank god for AlopeciaAotearoa ;).

Comment by Bex Weller on September 30, 2013 at 7:46pm

Hi everyone, please check out my fundraiser & share with others on facebook! Sharing is caring right!! :P
https://www.facebook.com/events/420789734692794/425026964269071/?co...¬if_t=like

Comment by Bex Weller on September 30, 2013 at 7:44pm

Yup I'm all for it!! Lets start brain storming some ideas to bring to the table in Hamilton!! CAN'T WAIT!!!

Comment by PaulJ on September 30, 2013 at 3:34pm

Yes I'll be there !

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