Helping a child respond to questions about their hair loss.

My 9 year old daughter developed Alopecia Areata about 18 months ago. In the last few months it's progressed to Totalis.

In the summer months when we are swimming she wears a swim cap that has hair attached. She will not wear a swim cap without the attached hair.

Sometimes this prompts questions from other kids. My daughter is just not at the point of being able to answer them without getting upset.

Does anyone have any quick responses that don't go into explaining what Alopecia is? I don't want to supply mean answers just looking to give her a few responses she could reply with. One I was thinking about is:

"I don't want to get my head sunburned."

Any thoughts would be appreciated.

Regards,
Tish

Views: 128

Replies to This Discussion

Permalink Reply by Mom2Ray on July 21, 2013 at 12:44pm
It's very difficult at that age on what to say. What you suggested is good, but then some children will say...wear sunblock, your hair will keep from getting sunburned. I really hate it for you, but children will even ask more questions. I know this isn't much help, but I would be afraid she would be upset having to explain the "BUT WHY" from children.
Permalink Reply by Sara and William on August 11, 2013 at 11:58am

I assume she wears a wig when she's not in the water? I would go with "it takes forever to brush out my hair when I don't wear a cap." She doesn't have to get into the "wig" part because it's nobody's business if her hair is natural or a wig.

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