Replies to This Discussion

Permalink Reply by Cindy on November 24, 2008 at 9:38am

Tammy, have you talked to her therapist about her AA? If you are concerned about her reaction I would talk to her therapist about the best way to approach her and even consider having the talk with the therapist present. It may give you both the support she needs to begin to understand and deal with it.. Also, if you go to the NAAF (National Alopecia Areata Foundation) website they will send you info on Alopecia that maybe help you to understand AA and help you to explain it to your daughter. I also suggest checking out the children's alopecia project website too. When Samantha started losing her hair we told her straight up that she had a condition called Alopeica that causes hair to fall out. We told her that her body is allergic to her hair and that is why it is falling out. That he body won't let her hair grow, but we are giving her medicine to try to help hair to stop falling out. We made sure to tell her that she is healthy and she can still do all the things she loves with or without hair.

Permalink Reply by estrella on November 24, 2008 at 10:55am

My daughter was also a very stressed child. When everything began 2 years ago, I went to a therapist, and she is still going until now. The support of the therapist has been great to follow all the process. Now my daughter is a different child, no stress at all, she understands her condition totally and she is coping fine, she has lots of friends and in the school she is doing well. My advice is to look for proffessional help because the challenges for your daughter and yourself are going to be many. If you have any other questions do not hesitate to ask,

a big hug,

Estrella

Permalink Reply by Mia on November 24, 2008 at 1:20pm

I bought the book
The Girl with no hair by Elizabeth Murphy- Melas
and my daughter (4 years old) Understood her condition, and now she shows the book to everyone and is happy with the story.
I hope it can help you

Permalink Reply by Tammy -mom of Ramsey on December 16, 2008 at 1:47pm

I just wanted to tell everyone that my little girl is coping very well. She likes the attention she is getting, it has all been positive, which is good. She knows that we need to put "the cream" on her bald spots twice a day to help the hair grow. I know others have said the steroid cream doesn't work well for Alopecia, so I am hoping it works for her.

Permalink Reply by Diane Hernandez on December 30, 2008 at 7:22pm

I'm glad to hear that your daughter is doing so well. My daughter also has anxiety. She is nine and has seen a therapist since she was 5. The alopecia hasn't caused her any stress as of yet, but it has not been obvious to date. I think it might get more obvious in the next few months. So. . . we will see. This site has helped me learn about all the amazing people that have this disease. I guess we It will be awhile before we know how the effects of various events and situations on our children's lives. One day last month I heard someone say, "An easy life and a good life are not the same thing . . . a fact that is lost on our society." I really hold onto that statement and it helps assure me that things will be ok -- aa or not. Anxiety or not.