Replies to This Discussion

Permalink Reply by Sara and William on February 13, 2011 at 12:18pm

I have a 9 year old boy in third grade who is going through his second round of losing his hair. I haven't talked to him about this yet, because I'm not home, but I'll chat with him about it tonight and see if he's interested. Just wanted to let you know you were heard and not alone:)

Permalink Reply by Sara and William on February 13, 2011 at 8:55pm

William is interested. Let me know how you want to work this:)

Permalink Reply by jim truglio on February 15, 2011 at 1:22pm

Awesome....
We will talk to Cade tonight after we get home from work and I'll get back to you tomorrow. Are you in the Atlanta area

Permalink Reply by jim truglio on February 15, 2011 at 6:25pm

Just spoke to Cade and he is interested as well. I'm not real sure how to work this either.. If you would like to talk on the phone let me know and I'll email you my number and we can talk first. :)

Holly

Permalink Reply by Sara and William on February 23, 2011 at 10:49am

Sorry, I didn't realize I wasn't getting email updates on this!!!

Talk is fine, or we can do emails. Whatever:))

--Sara

Permalink Reply by Lisa on February 16, 2011 at 12:30am

Hi, Jim and Holly...we are in Nashville, not too far away and I'll ask Nina, who's 10 about this.
She really doesn't want to talk much at all about it, very headstrong, and although she's got SOME hair left, it's getting really hard to cover, comb-over, braid...anything.
We had steroid shots 2 weeks ago, and are trying Nioxin...i think she's in denial and is hopeful it'll grow back, God bless her. I just want her to know ALL the facts, and get as much info as I have, and know she's not alone...it seems you can talk about it and research and Google it to death and still feel absolutely helpless. I used to pray for her hair to grow, now I pray for God to please give her strength and courage. She has more than I do and can teach me I know.
Love t keep in touch!
lisa :)

Permalink Reply by Sara and William on February 23, 2011 at 10:50am

Oh, and no, not anywhere near Atlanta. We're in Nebraska.

--Sara

Permalink Reply by Shelly Clark on March 4, 2011 at 6:00am

Hey! I have a 10 year old boy and we are in the Atlanta area. He was diagnosed 4-5 years ago. It started as a coin size spot on the back of his head. Then he started getting other spots on the side and top. Eventually the sides and top came back but the back has never come back. Now he also has a bad spot on his left side which is getting worse. I know he would LOVE to talk to another child his age if you are still interested.
Shelly

Permalink Reply by jim truglio on March 21, 2011 at 4:50pm

Hi Shelly,
Cade has expressed interest but is just not ready at this time to talk to anyone. He goes through phases of ups and downs, and i just don't want to push him. If i can encourage him to reach out to your son, i def will!! I think the support would be good for him:)) School has been very hard for him this year since this just happened in August. I will tell him there is someone to talk to that knows what he's going through and hopefully he will open his heart to reach out. Right now he's just angry:((
Thanks so much for your response:)
Holly