Replies to This Discussion

Permalink Reply by JOSE CHARQUENO on March 19, 2009 at 11:05am

DONT PUT TO MUCH EMPHASIS ON THE SPOT IF IT STARTS SPREADING IF YOU ARE ENEASY ABOUT IT AND SHOW THAT IT BOTHERS YOU IT WILL SOON BOTHER HIM TOO. BE STRONG AND DONT LET HIM SEE WEAKNESS AND HE WILL GET THROUGH IT GOOD. MY SON HAS HAD ALOPECIA SINCE HE TURNED 3 AND HE IS OKAY WITH IT HE IS COMPLETELY BALD AND HAS NO EYELASHES AND EYEBROWS. HE HAS HIS TIMES WHEN IT BOTHERS HIM BUT OTHER THATN THAT I ENFORCE THAT HE IS HANDSOME AND CUTE.

Permalink Reply by Tracy on March 19, 2009 at 11:23am

My daughter started almost a year ago with one spot on the back of her head the size of a toonie. It got bigger and bigger then there were 2 spots, then 8 spots, and now a year later she has lost about 60% of her hair. Its devestating, especially to a little girl. Its harder on us moms I think than on the kids, at first anyways. Don't focus on the spot, otherwise he will start to feel self concious. As hard as it is, there is nothing you can do about it. Although your derm may offer treatements, from expierence even if hair grows back in spots, it falls out in others. I have given up with the treatments thus far and are opting for a wig. Good luck, I am sure everything will work out ad soon enough you will accept it :-) Maybe :-) Good luck!

Permalink Reply by Tammy -mom of Ramsey on March 19, 2009 at 12:12pm

Has he been diagnosed? You should take him to a dermatologist and have blood tests done just to be sure there is nothing wrong. The blood test will show many different hings (blood sugar, thyroid, hormones etc) My daughter has been having spots for three 1/2 years (she is six now). She has only had spots. This past year I finally took her to a dermatologist. All of her blood work was great. She started on steriod cream and it has been working. Right now she doesn't have spots that are completely bald. She has many that are currently in a regrowth phase. Our dermatolagist has said this is something that she will always have, but the fact that she responded so well to the cream and that her hair has been regrowing the in various spots over the past three years, gives her very good chances that she won't ever lose all of her hair. Now saying this, Alopecia is very unpredicatable, but I am just living in the day.

I hope you get the answers you need. PM me anytime! We are all scared, and only another mother of a child going thorought this will comepletely understand what you are feeling. I am sick of people telling me "it is just hair." When the fact is that this is not "just hair." This is my child's life.

Permalink Reply by german mama in NY on March 20, 2009 at 11:02pm

HALLO, I NOW IT IS NOT EASY, AND IT CAN BE GO HARDER, DO NOT STRESS YOUR SON WITH CHECKING HIS SPOT, IF HE HAVE AA, SORRY IT SOUNDS HARD BUT IT IS THE TRUE, THERE IS NOTHING WHAT YOU REALLY CAN DO, I ALLWAYS SAY IF THERE IS A TREATMENT NOBODY WILL HAVE AA!!! LIKE CARLOS SAID, YOU HAVE TO BE STRONG SO YOUR SON WILL ( THE MOST OF THE TIME) BE STRONG TOO, TRY TOO BE POSITIVE AND BE HAPPY HE IS NOT SICK, I ALWAYS SAY, AA IS A LITTLE BEAUTY MISTAKES, THATS IT!!!
PS: II'M OFTEN UPSET, BUT MORE WHAT PEOPLE SAY OR HOW THERE STARE AND OF COURSE I'M LITTLE WORRY WHEN MY DAUTHER GET OLDER, BUT I ALWAYS SHOW HER BE RESPECTFULL,STRONG AND POSITIVE THEN THE MOST PEOPLE A ROUND YOU WILL BE RESPECTFULL,STRONG AND POSITIVE TOO. AND TALK TO THE TEACHER'S ECT., GET SOME INFO MATERIAL, CAP CAN SEND YOU VERY GOOD MATERIAL, GREETINGS, SABINE Delete Comment

Permalink Reply by Paige on March 24, 2009 at 11:56pm

Hi Allison,

It is difficult and scary. Alot of people stop with just a spot, so try not to worry too much. It seems like the people that lose a majority of their hair are the exception, not the norm.

We tried a few treatments with my daughter (who was 9 at the time) with no effect. I have finally come to a point where I understand that alopecia has no cure and it is pretty much a disease with a mind of it's own. The treatments available are highly uncomfortable and must be continued to have any hope of effectiveness. And many just aren't safe. We decided not to put Rachel through all of the trial and error and pain and discomfort. It was the decision that was right for us....

I search the internet often (Naaf site is very good) to see if there are any breakthroughs to a cure or a good treatment. Until then, living at peace and acceptance is what works for us.

Good luck to you and your son.
Paige