Parents of Children with Alopecia in Ottawa

Hi everyone,

I have been a member here for a couple of years. I've had AU since 1996.

My 6 year old son started losing his hair about 3 weeks ago. A Derm at CHEO confirmed yesterday that he has Alopecia. Not sure yet how much he will lose, but by the looks of it he will be either AT or AU. Most of the hair on his head has fallen out. I can't believe how fast it has gone.

So I'm just wondering if there are any other parents of kids with Alopecia in Ottawa. I've dealt with own AU for years, but now I'm in uncharted territory. I'm not sure what to do, where to start....and how to make my boy realize he's not alone.

Thanks in advance for any help!
Cate

Views: 106

Replies to This Discussion

Permalink Reply by Karen Leffingwell on October 19, 2011 at 1:52pm
Hi Cate. We are in the US, but found a great resource. It is called "CAP"- Children's Alopecia Project. They have a website, parent chat meetings, and share great info. I got a lot of info through them when my daughter was diagnosed last year. They are also on Facebook. Good luck. Karen
Permalink Reply by Rose Marie' on October 19, 2011 at 4:06pm
Hi Cate

There is a Canadian support group go to www.canaaf.org Very nice people that will be willing to help. I met some of the Canadian's involved with this group at this years Naaf conference. Give them a call.

I'm a mum of a daughter with alopecia she was diagnosed when she was 12 she is now 20, if I can pass on any help I would be happy to do so.

Catch you again soon.

Rosy
Permalink Reply by Tara- mother of Presley on October 19, 2011 at 5:10pm
You can check with the Canadian Alopecia foundation at canaaf.org. They might have some information for you.
Permalink Reply by Jules1984 on October 21, 2011 at 5:43pm
We're from ottawa!! We would love to meet parents and children with alopecia. Just curious... who was the derm you saw at CHEO?? Our derm is Dr. Walker... he's the one that also confirmed for us that my daughter had alopecia areata. It would be nice if we can get to know eachother.. I've messaged you already, hope to hear from you soon!

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service