My son has 3 patches and Im watching my sons hair thin daily. I have made a big deal to him about the recent 2. He knows about the 1 that is in regrowth. The second one is still small and hideable so I didn't say anything to him. The 3rd is even smaller so far so I didn't tell him of that either. But now that I can see his hair thinning almost in front of my eyes, it seems inevitable he is going to lose his hair. Should I tell him? Or should I wait and see? What do I say to him without scaring him? If he is losing it, will it be slow or is iy going to thin and just one day he will wake up and it be gone? Any advice you can share would be appreciated.

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I struggle with what I should say sometimes too. How old is your son?
He is 6.
he is older than Kaleigh which makes it a more sensitive conversation. My daughter is only 2 so we just try to not talk about it in a negative way in front of her and if I see a new spot, I say "humm you have a new spot" or "you've got a new spot right there" and show her where it is. I didn't know what to say at first but I think I'm hoping that just talking about it like its no big deal will easy a little of her anxiety around it when she is old enough to realize that her hair is falling out. Maybe you could ask him "Would it be alright for me to check your hair and see if you have any new spots?" and then judge from his reaction to that. I'm really of no help, but maybe if he feels included in the processing of "finding" the spots he will be more accepting to hear about them. Keep us posted on how it goes. take care, Shay
Hi. My baby started with a small patch and it then started to thin out. I noticed it coming out in her hats, towels, bed sheets, etc. I just noticed it everywhere. He will figure this out himself, but I would prepare him. I am an elem. school teacher and I feel that when a child is well prepared for the inevitable and equiped with the proper coping skills, they do better. I think you should discuss this and perhaps get some books. How old is he? I would tell him about Alopeica and why it happens and what happens. I would say that it can one day regrow back. Tell him how you will help him with school and everything will be ok. I would try to cover all aspects to make it less tramatic. The more he knows the more he won't feel so blindsighted and helpless. Good luck and let me know.
My daughter started losing hair at 13 mo, and she lost it like crazy for about 2-3 mo. I thought she would go bald, it went so fast. However, most of her patches have about 1/2 inches of regrowth now 6 mo later. She got some new patches, but it was less severe. My point is, you never know what will happen--he may not lose it all and it may start growing on its own. I never have had to have this convo w/ Grace yet, but I do dread it. I wish you the best. By the way, there is new research saying that people w/ AA often have low iron. If he hasn't had iron or ferratin workup done, I'd ask your ped about doing it. Grace was quite low, which likely led to the quick shed as iron is essential for hair. Good luck!

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