Comment

Comment by Pam Fitros on April 10, 2009 at 9:09am

Hello Margaret!
I am from Grand Rapids, Michigan in the States. I also have Alopeica Universalis and wear no head covering (unless it's really really cold). I have not seen another woman in my city who steps out bald either. Alopecia World is a virtual meeting place where we can make friends, share our stories find acceptance and affirmation. Welcome.

Comment by margaret watson on April 10, 2009 at 5:50am

Hi to you all. I have Alopecia Universalis and want to know if anyone out there lives in my area of Exeter, Devon, England U.K. Please contact me if you fit the bill. If so you have probably seem me around as I don't wear any head covering but think I am the only one arounnd! It would be great to know someone else here with similar differences!
Margaret watson

Comment by Mary on April 5, 2009 at 12:28am

Yeah....another bald lady! You should also check out the group - Sisterhood of Women who shaved! Great ladies there, too. I love Arizona!

Comment by Linda Ban-Sandbloom on April 4, 2009 at 10:21pm

Hi All~
Wow...so nice to see so many who look like me! I'm 48 years old (old as dirt!) and I've had some form of alopecia since the age of 12. Totally bald from about 35 and up. Tried wigs and it just wasn't my style so I'm wearing hats...too much sun in Arizona will KILL the top of your head. Took me many years to get where I am now and I'm so grateful to see so many of "me" who probably accepted their beauty way before I accepted my own.
You're all insprirational! Thanks for letting me join your group :)

Comment by Garden Girl on April 3, 2009 at 10:36pm

Hi Everyone!
I've had AU most of my life. Recently, thanks to the support of groups like this one, I decided to "come out" at work. I am a professor at a college where diversity is realy appreciated. At first, I got the usual, "how is your health?" Then people realized I was healthy and bald! Since that time, my boss has asked me to teach a diversity course!! I never thought I would see the day when AU was an advantage?!

Comment by Valerie on March 21, 2009 at 9:48pm

Hey Sandy, I got a giggle out the "hairless wonders" crack, so thanks for that! So did my boyfriend. Yeah it's been a while but now that summers comin' I will feel like I'm very lucky NOT to have hair, summers good for that! So do you were wigs too? Or, as I like to call it, do you free-ball it?

Comment by Valerie on March 13, 2009 at 6:03pm

Thanks Mary! I've accepted the hair loss too. When asked previously about it, I was always asked,"What kind of cancer do you have?" I always said I was lucky because I didn't have to have cancer to lose my hair, then I got breast cancer. LOL, talk about luck? I always hoped that maybe the Chemo would bring my hair back, but to no avail. Anyway, I think I'm cool with it and most of the time forget that I'm lacking any hair at all!

Comment by Mary on March 13, 2009 at 5:53pm

Welcome, Valerie! You'll find lots of like-minded women here. I miss my hair every day (and often in dreams at night), but I've accepted that this is the "new me", and I try to focus on the good health that I have and just get on with my life.

Comment by Valerie on March 13, 2009 at 5:31pm

Hi, I am new to this site too, and I have to admit this is awesome!! I also have alopecia universalis. I have been at the universalis level for about 8 years. I don't think I ever felt as free as the day I shaved what little I did have left on my head. The first day I went to work bald, was about like going to work with a new haircut. It was very liberating, yet there are a lot of times I feel like I'd give anything to have it all back again. So on that note, Hello, everbody! It's nice to find others like myself.

Comment by Mary on January 27, 2009 at 11:59am

The only way women will have the choice to go bald in public - to the degree that men have that choice these days - is for women to BE bald in public. It won't happen until we make it happen!

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