Comment

Comment by SilkHead on February 20, 2012 at 10:19pm

Hi all,

I just wanted to thank everyone for their words. I went away the other day after my post feeling like i'd made a mistake, but left it and went on with my day. To come back and read all the posts left me feeling much better about expressing myself. What I found was support and care. Thanks for that. It's interesting to think and begin to believe that everyone does have something valuable to offer. I guess that's true of anything in present in my life, if I step outside of myself and look at everything as a whole, it is really alot better than when I view it with my own eyes. I have blinders on most of the time.
I'm going to give this a shot and come with the best of me. I thought I had healed alot of things to do with my alopecia and come to acceptance, yet, I realize I still have alot of work to do. It shows with my fear and resistance to meeting the group of alopecians. The thing is, I believe there is a payoff for facing my fears and moving through it. With a support group, I don't have to be alone.

Cool Thanks again

Comment by Dana on February 20, 2012 at 5:43pm

Hi silkhead....the other women on here have spoken so honestly and eloquently and have echoed some of my own thoughts about our diverse and positive group as mention before we are in different stages in life and in our alopecia careers but I believe we do support each one where ever they may be! On a personal level I was scared to death to go meet people cold for the first time but I know this sounds dramatic after only two meet ups but I need this group and the feelings of acceptance and love it evokes in me!! Each person has said something so valuable to me it takes me days to process it all. The thing is it's hard to see all of who we are without some real face time :)

Comment by elenore ahlsten on February 20, 2012 at 5:15pm

Thanks Dana, Will let Sandra know.

Comment by Dana on February 20, 2012 at 5:08pm

Hi Elenore I would like to meet Sandra too I can come for the Sarurday session from 10 to 11 am....researching all my options:) thanks see then.

Comment by elenore ahlsten on February 20, 2012 at 4:14pm

I just wanted to remind you all of Sandra Fournier's visit to vancouver starting this Thurs. Not only is she very interested in meeting our fledgling group but she can be a great asset to us with AU. Several of you I have noticed are very comfortable with going "au natural" and some may want to know what is out there besides mesh wigs. I think it would be most enlightening and may also give you a different perspective of our unique problem. Sandra will make herself available on Thurs. the 23rd from 2-5 PM also on Friday the 24th from 3-6PM and Sat. the 25 from 9-llAM. She is staying at the Sunset Inn at 1111 Burnaby & Thurlow. Please let me know if you can make it even for 15 min, otherwise Sandra and I and Tanya will be drinking wine all by ourselves.

Comment by JBean on February 20, 2012 at 1:44pm

I had a great time at the last meeting, and I enjoyed meeting all of you that were there. I was a tad nervous as it was my first time going, but it was a very relaxing, welcoming and comfortable environment. Thank you! Although I am sorry I had to leave so early! I'm sure I missed out on some good and interesting talk. I won't be able to make the March meeting as I'm working - but I hope to see you in the coming months!

Comment by Chris Jeffer on February 20, 2012 at 10:56am

Wow...Connie - thanks for sharing that. It really reinforces what we are trying to achieve here - building a community based on trust, caring and support. All of you are so amazing and thank you to each one of you for showing up to these meetings to ensure this community thrives!

Comment by Tanya on February 20, 2012 at 12:45am

Thank you all for your responses. I think they are all very sensible and well thought-out.

The group is about 6 months old and we've had 4 meetups! Yes very young, and off to a pretty awesome start I'd say! I really enjoy meeting each one of you and feel we are lucky that each meetup has had a very supportive, fun, and positive vibe, because you set the tone! :) Everyone from the 3rd meetup came to the 4th, and that says a lot.

Alopecia career - I like that. It does have that career-feel because we grow with it and we go through phases. It's certainly no part-time job ;)

Aw Chris I'm sad that you can't come to the next meetup. But have a great time and learn lots, and we'll see each other soon :)

Comment by Jana on February 19, 2012 at 11:58pm

Thanks Connie. As someone who has only been to one meetup, I appreciated your thoughts. Being conscious of the fact that we are still a young group is really critical, so this kind of exchange is really valuable in how we "grow" the group (or so I think).

The only thing that makes us homogeneous is the thing that has brought us together - alopecia. Aside from that, I could not agree more . . . We should stay true to ourselves. What we take from and give to this group should build that individuality. : )

Comment by Connie B on February 19, 2012 at 11:51pm

A couple of thoughts on the posts from earlier today...

Each of us brings a different perspective to everything we do - it's that diversity that I value and deeply respect. If each and every one of us stays true to ourselves, and contributes in a personal and meaningful way, this group will never become homogenous.

I'm new to AW and met several members of our group at the February meet-up. My first impression of our meet-up was very good. I was so happy to find a group of women that shared the same disease....people that I could relate to on a wide range of topics.

I participated in several different discussions that evening - ones that were meaningful to me based on where I am in my alopecia career, which is 2 years. Some were very serious and emotional conversations, others were funny, and I was grateful to meet Eleanor who gave me an excellent referral for tattoo eyebrows and eyeliner. She gave me the confidence to do something that I was deathly afraid to do prior to that evening. I also made a point of meeting with Chris a few weeks later, as I was keenly interested in learning more about a non-traditional healing path that she was taking. It was a great connection for me, because we talked about so many other things related to alopecia - and some were very personal. Things that I didn't have the courage to talk to anyone else about, even my best friends. It gave me the courage to talk to my husband about something that had been on my mind for several months. I find strength and peace in the stories of others.

This group is still in the "forming" stage, and it will continue to evolve as others join and add their perspective. As for me - I'm optimistic about this group, so I'll continue to tune in :)

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