Frontal Fibrosing Alopecia Discussions (350)

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Crown extensions TOPETTES

Hi was wondering if anyone else had come across these, or have one? Apparently they come in different shapes and sizes, and there is one t…

Started by star

2 Oct 2, 2014
Reply by star

Wondering if there could be a connection: FFA, Bowens disease, Sarcoidosis, Endometriosis & (pre surgery malignant ) Thyroid Nodule...

I joined this group for digital support, as I don't want to continue to wears wigs. If not before, I can't do it next summer - 2015. I've b…

Started by KayDeeW

2 Aug 25, 2014
Reply by KayDeeW

For ladies not using any medication - drug free management of FFA

This discussion is for ladies that have stopped using medication or have decided not to use medication. I used drugs for one year. Now usin…

Started by Debs

30 Aug 20, 2014
Reply by Debs

New to you!

I am pleased to have found this site as the discussion has reassured me about treatment questions and the possibility of coping with this d…

Started by Mareea

8 Jun 27, 2014
Reply by Classical Anne in NC mountains

Simple question - hair color or no hair color?

I been coloring my hair for at least 20 years.  I have not colored it since March and am "due" for a touch up.  I really want to continue t…

Started by Jen S.

12 Jun 26, 2014
Reply by Jen S.

Some of the simple things that may have helped me

As I have mentioned elsewhere, because of my unfortunately requisite list of high dosage maintenance meds for a large collection of chronic…

Started by Classical Anne in NC mountains

0 Jun 13, 2014

Could antibiotics be a trigger for FFA?

I thought I would start a post dedicated to tracking antibiotic use prior to FFA diagnosis. I reviewed recent comments and counted up ten o…

Started by Anne Louise

50 Jun 2, 2014
Reply by Classical Anne in NC mountains

Recently diagnosed with FFA but pretty sure it goes further than that

Hi everyone, This is all still really new to me but thought I'd jump in here. I was diagnosed with FFA about 3 weeks ago. The dermatologist…

Started by Kathy

7 May 15, 2014
Reply by Classical Anne in NC mountains

New Spanish study into FFA

I am new to this site so hope that this post works - apologies to all if it goes wrong. A bit of background on me first - I have recently b…

Started by Maggie

27 May 4, 2014
Reply by Camie

Regimens

Hi Everyone, I know in these various discussion threads many of us have commented on what hair loss we have, what medications we are trying…

Started by Sam

25 Mar 29, 2014
Reply by dee

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