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Comment by Halfbakedwho on January 26, 2018 at 4:15pm

ouf catching up on all of your news... am glad you are here. I went to dinner with a friend who assured me that she can't see my hair loss, and that she "would absolutely tell me" if she could. She is that sort of unsparing person, so OK. I hide it for now. I received my nifty new headband in the mail and I actually like it : ). I too think I may be losing hair at the nape of my neck because the skin feels strange and sensitive there - although it could be because I've been wearing my hair up in a barrette and puling the front down over my bald spots. Every week they are growing (the spots). But if my critical friend doesn't see them, they aren't there for public view (yet). Take care, everyone. Off to wash the hair I have left before bed. 

Comment by Liz Lov on January 26, 2018 at 1:56pm

I had a wonderful and sensitive experience at 

Shepperton Wigs, they are close ish to Heathrow airport

http://www.sheppertonwigs.co.uk/

Jo and Linda really put me at ease, I was terrified when U first went there . Super happy now with this one:

Ellen Wille Prime Hair’ model ‘Impulse’

Comment by Airam-FFA on January 26, 2018 at 1:51pm

Thank you Liz L, I have had a quick look at the Shepperton Wigs site.  Do you know if our condition (FFA) is exempt from VAT?

xOx

Comment by Liz Lov on January 26, 2018 at 1:42pm

I had a wonderful and sensitive experience at 

Shepperton Wigs, they are close ish to Heathrow airport

http://www.sheppertonwigs.co.uk/

Jo and Linda really put me at ease, I was terrified when U first went there . Super happy now with this one:

Ellen Wille Prime Hair’ model ‘Impulse’

Comment by Minter on January 26, 2018 at 8:04am

Afraid, I don't know of any wig salons in the UK, but I do follow this site and they seem to have a great deal of good advice about wigs and wearing them and all that is involved-  

https://www.simplywigs.co.uk

That is awful that you had a not very good experience at a wig salon and I think it is good you are following up on it- taking that first step to go someplace like that when you are feeling so fragile, a salon has to have good people working there to take good care of people going through not good times because of hair loss. 

Comment by Afraid on January 26, 2018 at 2:28am

Hellooooo! 

thanks again for the sharing of information, advice and support etc.  Each week/day/hour as this condition progresses  I’m not sure I can manage the intensity  of emotions which range from gripping anxiety to self imposed  exhausted ‘calm’.  I am currently taking steps to gain back some control and looking into buying a wig.  Can anyone recommend somewhere in the uk where you can buy a fabulous wig alongside knowledgeable experienced and sensitive staff?  My experience this week using a salon aligned with ‘ mynewhair’ was shocking...I won’t bore you with the details but considering the courage it takes to walk into a hair salon to then be treated in such a way does make me question the guiding principles, values and motives of a celebrity hairdresser introducing this notion and hair salons adopting such a scheme.  Perhaps I was incredibly unlucky.  I thought it would be interesting to try and give some feedback directly to the celebrity hairdresser more so as a ‘critical friend’ however, my email was forwarded directly to someone within the charity who advised speaking to the owner of the salon (who was there at the time!) and/or fill in a lengthy complaints procedure and forward to a PO Box Number.....! Hey ho!!!  Another day begins..... and determination strikes again.....

Thank heavens for this therapeutic ‘space’ and circle of support. 

Comment by Airam-FFA on January 26, 2018 at 12:57am

Hi illustr8r 

Thank you for sharing the video clip. It makes it very clear that you have to make sure your Microblading Technician is properly trained and experienced. 

That is what has been putting me off - What if they do a ‘botched’ job. 

xOx

Comment by illustr8r on January 25, 2018 at 9:14pm

The lady that did my eyebrows was on the news. Just thought I'd share, especially for those who are thinking about microblading. Again, the best decision I've made in dealing with FFA. Gave me my face back! :)

http://klewtv.com/news/local/klew-investigates-microblading-the-dee...

Comment by Minter on January 24, 2018 at 11:25am

Sad in Chicago, I am so sorry that this is happening to you now on top of everything else this stupid disease does to us- with FFA, it seems every time you feel like, ok- I've got this, I can deal with this- it turns around and slams you with a new thing to deal with. It isn't fair at all and yes, yes, yes, it is only hair blah blah blah, but it isn't only hair when it is our hair, this sucks and you have every reason to yell scream or whatever you need to do to feel better!

Yash, I get my hair colored, every 2 months or so ( I should do it more but I get lazy and forget)!  I usually just get the roots done and she "pulls the color through"  I have strawberry blonde colored hair and I get my roots colored darker, almost a dark brown because if I have a lighter blonder color it looks much thinner and translucent- there are a couple of pics on my profile page I think you might be able to see the color even though my hair doesn't look great that day, the color does ;-)   

Jess,  those pics are my before and after the day I got my brows done- It was over 3 months ago and I LOVE my brows! I used to have to draw mine on every single day and along with checking the mirror for my hair I also had to check to make sure I still had brows, now it is one less thing to worry about. I do still use a little brow powder, but that is only because I have very little brow hair so it can look a little shiny- but using a little powder each morning is nothing compared to the (sadly lacking) artistic talents I had to rely on to do my brows before! I honestly don't know how microblading "long term" would affect the skin, but since my skin is shot now because of this stupid disease, whatever microblading does to it is minor compared to how good my brows look-

illustrated8r, my hair is so limp without products- funny I never used hairspray or much of anything before this, now I am lost with hairspray and root boosters and hair powders et al... I think I am just going to end up going shorter and shorter and shorter until there is nothing left and then I'll be like why didn't I do this sooner!

Comment by Yash on January 24, 2018 at 12:38am

I’m feeling great this week apart from the fact that I have to work with bullies. Could be that we have a three day weekend for Australia Day but my hair has looked good all week. Couldn’t believe it. Felt like my old self. Mind you that will change - nothing lasts. 

Im contemplating whether I should dye my hair. Haven’t dyed it for over a year now and a few grays are showing. 

For those who still dye their hair, have you gone lighter in shade or stayed the same 

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