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Comment by Yash on January 21, 2018 at 12:11am

My only positive is it that I no longer have to shave my legs as I lost the hair on my legs and arms as well.

Is is a curse? Why doesn’t the hair in the areas that you don’t want still be there. Crying That I have lost the hair in the areas that count most (head and eyebrows) but still spending money to wax and laser the hair in the bothersome areas which the hair is thriving.

Comment by illustr8r on January 20, 2018 at 11:14pm

I swear if I have an inner dialog that says, “Hey, your hair looks okay today. Not too bad all things considered. Well, good. Off we go!” Soon after I will have a bad hair day that triggers a new dialog of self doubt and woe is me. I hate this stuff! I’m going to get the Clobetasol out tonight-haven’t needed it for months. Dammit.

Comment by Yash on January 20, 2018 at 7:33pm

Hi Christy Q. I got my eyebrows tattooed and it was the best thing I ever did. Just wished I had done it sooner. I wanted to get them micro blades but was told it wouldn’t last as long and due to me losing nearly all my hair a blocked eyebrow tattoo was the way to go.

I was a bit nervous at first as I felt like a freak as I felt I looked like one of those vantriloguist puppets but once it starts to peel, within a few days, I loved it. 

Comment by Jess on January 20, 2018 at 6:46pm

I feel you illustr8r. I recently responded to someone's post telling them I thought the Dutasteride was working and that I hardly use Elidel anymore because I don't have inflammation. I apparently forgot to knock on wood because less than a week later and I'm seeing a return of the little pink dots around my temples. The skin on my face is really starting to get to me too. It's faintly bumpy and rough along my temples and jawline and my forehead is bumpy and shiny but not greasy at all. The skin around my temples too appears to be getting crepe-y. I was looking at pictures of myself from just a few years ago and admiring my complexion. It really was one of my nicer features. I wonder if the skin every goes back to normal if this stupid disease is snuffed out? Ugh..I'm pretty much just venting. On a different note, Halfbakedwho, you sound so much more at peace now than when you first starting commenting. I'm glad : )

Comment by Halfbakedwho on January 20, 2018 at 5:04pm

I haven’t been perfect in putting the minoxidil and clobestal on my scalp - maybe like you illustr8r with the bread- it doesn’t change that my hair is being chewed up and spit out from the inside out, it would seem. I really appreciated the video explaining the problem on the CARF site, because I don’t often (only once or twice) see a tell-tale pimple. Otherwise the scarring is going on too deep in the follicle to be apparent. The weird part for me is the numbness where the hair is gone. In a few months, headbands... meanwhile am getting on with my life pretty well. Thank goodness for dance class, and my family, and a LOT of therapy. In that order, LOL? Oh yeah, and novels and audio books and cats too. But cats first. In France bread grows your hair, so eat bread from here. OK tired. Do not hurt your head on your desk, ouch.  ; )

Comment by illustr8r on January 20, 2018 at 2:46pm

Crap! Woke up this morning with a pimple in my hairline and the white pale skin border around my face is really tight and awful looking. Not sure what triggered it (do we ever really know?!?) but I am not happy about it. Skipped my usual castor oil scalp massage on Thursday...or too much bread?!? *head*desk*

Comment by Minter on January 16, 2018 at 8:11pm

ChristyQ, I got mine microbladed about 3 months ago and it was the best thing I ever did- they were always a light strawberry blonde anyway, but when they started thinning- it became a horrendous chore each morning to try and pencil/powder them in (along with getting them tinted every few weeks) and then checking all day long to make sure they were still there!  When I finally got my brows done it gave me my face back too :-)

If this is what you want to do, do lots of research, check reviews and ask questions, find a technician that you are happy with, don't go by price, go by quality!

Comment by illustr8r on January 15, 2018 at 2:05pm

ChristyQ: I’ve had my eyebrows microbladed (permanent cosmetics). Look up a technician in your area who has great Yelp reviews, client testimonials and posts their work online. Compare and contrast several as they all have a “style” though subtly different. Ask questions-and they should happy answer all of them.

it was the best thing I’ve done. It gave me my face back. Mine have faded a bit by they still remain a great base for powder and pencil.

Comment by Christi Q. on January 15, 2018 at 1:25pm

For those who have lost their eyebrows, what are you doing?  Do you just pencil them in?

Comment by Halfbakedwho on January 14, 2018 at 3:20pm

No real itchiness here either. The CARF site explains pretty well that there are different types of scarring alopecias. I am not sure I have the lichen planipolaris which seems to include itching and sores - but my dermatologist classified me as having this. What I do have is a strange numb sensation where I’ve lost my hair (due to scarring I guess). Like Minter, I have about an inch gone in a band around my face, thinning on top. It’s also worse on my right side, where the hair loss is accelerating behind my ear. I notice that I don’t need to shave my legs as often. The hair on my forearms is also much less than before. But no other weird feelings (aside from my general weirdness ; ) ! )

So far, my eyebrows seem okay though I worry my right eyebrow is thinning more at the end. 

Last spring I had bouts of eczema that drove me nuts, but not so much now (knock wood!). The dermatologist told me to watch the make-up...

I feel better emotionally though. We recently moved to a bigger town, and I started ballet classes again after about 20+ years of stopping (since my first pregnancy)! I love our new life, I feel healthy, and this hair thing won’t stop me from dancing ; )

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