Frontal Fibrosing Alopecia

Information

Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Jul 14

Discussion Forum

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Comment Wall

Comment

You need to be a member of Frontal Fibrosing Alopecia to add comments!

Comment by illustr8r on January 8, 2018 at 7:54pm

@Minter I’m glad dry shampoo works for you! My hairstylist is a big advocate for it’s magical qualities. LOL I have a can of it but it makes my head itch so I only have used it a few times. Oh well. Today, working at home in front of computer all day-hair looks fabulous! Well, it’s new version of fab-let’s not get crazy. ;)

Comment by Minter on January 8, 2018 at 9:09am

I hear you ladies!  Or it looks the absolute best it has ever looked the day you are getting it cut :-/

I have discovered that dry shampoo is my new best friend for my hair-  as no matter which shampoo/conditioner or combination of that I use, nowadays my hair is always thin and flat after I wash & dry it- after I dry my hair I give it a few sprays of dry shampoo and it gets a good bit of volume without it looking dry or like a rats nest- which it looks like at the moment as it is a hair washing day haha ;-) I'm also on the hunt for a good hairspray as I am now using hairspray pretty much every day to keep my hair where it supposed to be as opposed to B4FFA (before FFA) I used to use it only on the rare occasion-   so between the hairspray and dry shampoo I have a lot of "artificial volume" in my hair, but whatever - its working for now ;-)

Oh I forgot to say I got my Lucinda Ellery bangs & side pieces removed the other day- it felt really weird at first not having them there (even though I had only had the pieces for a few weeks) but I am soooooooo happy they are gone.  I would absolutely recommend LE for anyone who is interested in going that route, they are really great and my hair looked fabulous (yes I said my hair looked fabulous haha)! and I got tons of compliments- I just can't have something permanent on my head like that apparently, sigh :-( and if/when I get "hair" again, it must be something that I can remove myself when I want to.  I am now waiting for my hair/scalp to have a "little rest" after having so much done to it recently, with having the pieces added and then removed and then I'll go in and have it colored and get it trimmed.  

Comment by illustr8r on January 8, 2018 at 1:19am

My hair was flat and “gappy” today. My bangs kept separating and showcasing my high temple areas. Not sure what I did wrong in the washing/drying/styling equation today but not a good hair day. :(

Comment by Airam-FFA on January 7, 2018 at 6:12pm

Hi All

I have just had a look at the head gear on the two sites you mentioned - definitely a great variety to choose from. Thank you for sharing these sites. 

xOx

Comment by Halfbakedwho on January 7, 2018 at 4:05pm

ah, sorry I didn't mean to offend. I may get to turbans myself... but for now can hide under what's left of my own hair. I tend to joke about EVERYthing, like a nervous tic. My apologies. 

Comment by sunny112358 on January 7, 2018 at 4:01pm

Turbans are no joke.  I've recently discovered these and love them for everyday use, cover more than a headband and are much more comfortable than wigs, which I reserve for some work and formal occasions.  I buy mine from AliExpress, plain ones less than one Euro each so I got one in each colour to match all my clothes.  A bit more expensive but still very affordable are the velvet, metallic, sequinned, animal print, with applique flowers or pearls, sparkling brooches--something for every taste and occasion.  

Comment by Halfbakedwho on January 7, 2018 at 3:59pm

Or on weekends it looks amazing, but to go to work I have an electrocuted poodle on my head. I just got it cut and it's a drop too short which makes it stand up higher, and I can't attach it with a barrette. I hear you. 

Comment by illustr8r on January 7, 2018 at 2:19pm

How come it seems when I have to go somewhere my hair turns out crappy but if I’m at home it looks fine. I swear 9/10 times this is the case. Did I use too much conditioner, not enough, too little product or too much?!?  Ugh. I hate using hair spray but I had spray my wee hairstyle within a inch of its life today and I’m feeling very self conscious about-everything. $!?#%!!

Comment by Minter on January 5, 2018 at 8:21am

Haha happy Friday Halfbakedwho ;-D !

I just turned 53 and now have a neck that any self respecting turkey would be well proud of, blehhhhhhhhhhh. 

Now a velvet turban, turtleneck, cape and of course a sword might well be the way to go forward- wouldn't give a hoot about my hair if I was facing the world in that getup every day! 

Comment by Halfbakedwho on January 5, 2018 at 7:17am

Lol velvet turban! I will check it out. Am sensitive these days b/c almost 52 years old and my neck is falling down too. So I am going to wear a turban, and a very high turtleneck, and just let my face peek out. Like a turtle, hence turtleneck. Possibly I will also add a cape just to add to the mysterious effect. I will also need a sword. OK it is Friday, forgive me. 

 

Members (602)

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service