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Comment by pauliegirl on September 2, 2017 at 11:26pm

Hi Gang, To chime in...diagnosis 1/2016 for FFA but it had started with brows probably 2014. I had never had any derma-fillers or Botox until I got my only Botox for migraines in March of this year. And I believe it may have caused a flare-up of the FFA as it had otherwise not progressed since diagnosis. So no more Botox. Good news in case there are other migrainers out there: I believe that of all things, an over the counter herbal/natural supplement called Migrelief has really helped decrease the migraines!:)
It's funny that we with hair loss seem to have a commonality in overt stress in our lives prior to diagnosis. This seemed to be a factor amongst folks in my hair loss support group. But sometimes I think don't we all go through very stressful times and not necessarily end up with hair loss? My son suffered a sudden cardiac arrest while in college in 2012---blessed are we that they saved his life with an AED and CPR so of course this could have been soooooo much worse, but it still was a very stressful time. Agreed also that it has to do with sun screen chemicals. Daily for over 15 years on my face until I realized recently that my body reacted to them when they were applied systemically. And then of course I dug and found the Belgravia article siting the link. Smh! So hard to say what the perfect storm is as others have proposed. I sometimes feel like we all are teetering on the edge of figuring this out!

Comment by Airam-FFA on September 2, 2017 at 11:04pm

Hi Dee

Re. Your comment about Botox: I haven't used Botox or derma fillers - I was diagnosed last November 2016 having experienced hair loss for maybe three or four years. I think the causes of my FFA might be stress and once a day SPFs lotions as I developed a stinging sensation after using them for a long time.

I believe that stress is a major factor for FFA but also I think there are different associated triggers for each of us, which might explain why it is so difficult to find 'a cure' for this crappy condition.

xOx

Comment by Airam-FFA on September 2, 2017 at 10:49pm

Thank you for the suggestion to use dermarollers - hadn't heard of this before and am reading about them now. Amongst others, I have found this interesting: http://dermarollerinfo.com/micro-needling-derma-roller-for-hair-los...

xOx

Comment by Minter on September 2, 2017 at 7:48am

Joy, that is pretty much the reason I first looked into botox, tired of people saying I look tired! When I have botox, I don't hear I look tired every. single. day as without it.  

I too have neck & shoulder issues, arthritis and tendonitis, lots of headaches and pain from it, I wouldn't wish this neck pain/headaches on anyone- it is diabolical at times.   When I do yoga regularly it does help loosen it all up somewhat, but haven't been able to fit yoga in the last few weeks and I am feeling every ache and pain because of it.  

Oh and after reading about these derma rollers here, which I had never heard of before- I just ordered a 0.5 mm roller to give a try on my face and scalp, what have I got to lose except $13.99!  

And totally agree! I would have been so lost dealing with this FFA stuff without this site :-D

Comment by Joy on September 1, 2017 at 3:05pm

Ahh Minter a woman after my own heart - I run a business and work as a real estate agent at 69 - have not slowed down a bit - but need to look presentable!!! Youth driven culture that we are.  I had a face lift - actually a jowl lift and neck and upper and lower lids not to look younger but because everyone thought I always looked so tired - I did fillers once after surgery did not like them - have done botox not for several years though - we are still missing something - if we have had work done we could have upset the nerves but the stress issue is real for most of us - then there is the nerve issue of the nerves in our neck that lead to the scalp.  How strange (me thinking out loud) that this is a relatively new occurrence and first showed up in older active women and now younger and younger and some men - some as far back as the nineties - what has changed in the society since that time every where in the world - technology - we spend endless time looking down at phones, computers, writing, slouched watching television.  If the nerve channel is impinged it could be doing enough to cause this - none of the hair people or skin people have had much success in treating.  The diet issues are as well a major change in society - ingredients in our food - but for those of us who had eaten healthy there had to be something else - LPP is persistent once you get it which is probably a nerve issue as well - I am going to do some more research on the neck issue.  I have a slight scoliosis and have always had neck issues - actually have not had to mush trouble lately with my neck so maybe that is why my LPP is 99% gone - my shoulders are always tight which is where Sandra Hrasdzira Atkins who is on the other sight did a huge amount of research around the nerve channel.  I have had no problem using the dermal roller - I keep it in alcohol - have been doing it for about a week - I do it in the morning and use the rogaine at night just on the areas of hair loss - my LPP has not changed so I do not think it is irritating it - I roll and the areas of hair loss get pink but no pain or itch. I think I would have lost my mind by now if it had not been for these two sights - maybe we should read lying flat - LOL

Comment by Minter on September 1, 2017 at 8:17am

I've had botox starting, wow, I just realized 10 years ago!  I also had fillers one time only, again about 10 years ago.  

But I am not steady with the botox- I would have injections maybe once, twice a year, then skip a year or two and I actually just had my first botox treatment in about 3 years this past spring and had forgotten what a difference it makes and loved the results.  I plan to get it done in the winter after my eyebrows are microbladed in October and have settled down.  

I am not going to not get botox even if it is one of the causes of FFA, it is bad enough dealing with my disappearing hair, I don't want to have thinning hair and look droopy and tired on top of it, there is only so much I can deal with and work my smoke & mirrors magic on when I get ready for the day each morning :-(

Comment by Nina Jones on September 1, 2017 at 6:00am

No, never had botox or derma fillers but have religiously had facial CASI's over the years - but don't think they would be a problem...unless someone tells me otherwise...

I'm interested in the derma roller and hammer - will check them out on amazon...anything's worth a try... 

Comment by Dee on September 1, 2017 at 1:00am

I am trying to find out if FFA might be linked to botox injections or other derma fillers in the facial area?   Can any of you tell me if you've had these injections?    Thank you.

Comment by illustr8r on August 31, 2017 at 6:27pm

A few comments down someone mentioned a DermaRoller and DermaHammer for hair growth. I had never heard of such a thing but found them on Amazon and You Tube. I'm intrigued-has anyone used these things with success? With or without Minoxidil?

Comment by Ana_Brazil on August 31, 2017 at 6:12pm

Hi Christi Q., I have stopped all medication for a little bit over a month. What I notice before I stopped is that I was still loosing hair. That's the reason I decided to stop. I was also not taking as consistent as I should with all my travels, and I wanted to feel myself again. But I was taking 3 things at the same time: hydroxochloroquine + Dutasteride + drospirenone/estradiol (hormonal replacement). Just like you I am afraid to stop, and I will probably go back, but maybe one at a time. I am more conscious about my hair now, but I can't say for certain that I am loosing more after stopping the medication. I know for sure it is still going... I did not gain any weight, I actually lost about 5 kilos (11 pounds) due to a Orto Molecular diet, cutting gluten, lactose + adding prebiotics and probiotics to my diet, focusing on the intestine, and my body can deal with food better.  

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