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Comment by Halfbakedwho on September 17, 2019 at 4:07am

CurlyK - I love your new hair! It's been a while, I know, but I'm still here and still losing my hair and not wanting to take Finasteride etc. I've been following along on the FB group - different vibe there - people are more set on taking any meds or injections out there. I've lost a bit on top over the summer, but still manage to hide everything under the curly hair. 

I saw a new dermatologist in Paris in May who wants to restart doxycycline and minoxidil. I have been very irregular in the latter and am not sure I want to deal with the former. Has anyone been taking these regularly - and what side effects or benefits have you had? 

Hope you had fun in Amsterdam Curly, bisous. 

Comment by CurlyK on September 16, 2019 at 8:38pm

Love Occusoft wipes. They really help! My eye dr also has me using Celluvisc eye drops which seem to stay on my eye longer. Steroid drops did nothing for me. The other thing I started using at his recommendation is Lumify eye drops. Great to use if your eyes are red!!! When my lashes disappear, I use Rapid Lash as it always works for growing them back. 

My eye doc is putting in tear duct plugs this Friday. Has anyone had this done and did it help with your dry eye?

Comment by illustr8r on September 16, 2019 at 1:30pm

Since using OcuSoft my bottom lashes have returned, my upper lashes are thicker and since I wipe over my eyebrows too-they’ve thickened up too. Of course, not returning to pre FFA days but at least improved. Glass half full...

Comment by Elizabeth W on September 15, 2019 at 11:17pm

Regarding blepharitis, my eye doctor recently gave my husband and me a handout on blepharitis. We do not suffer from it and never heard of it. Apparently blepharitis is common in hot, humid climates such as in Florida.  Occusoft was one of the suggested treatments.  I did not know that there is a correlation between FFA and blepharitis.

Comment by illustr8r on September 15, 2019 at 8:18pm

It’s fall where I live-and just like that-my hair seems thinner and has had a mild shed with evidence of more hair in the shower drain. The summer was great for the most part and my pixie looked really good from all sides-even the front. Today, my bangs are stringy and separating making my temple loss more obvious. Dang it.

It seems like blepharitis is another forever issue. It clears up when I use OcuSoft wipes and soap but 8 days is the limit for not addressing it daily. *sigh*

Comment by 2Dachshunds on September 3, 2019 at 5:56pm

Yes,  ohnonotme, it is hard to find cosmetics without titanium dioxide.  It is also in toothpaste. I went to Whole Foods and all of their eyeliner have it so I ordered online from https://www.omiana.com/ and I ordered a powder as well. I got some Dr. Bronners and Weleda toothpaste. The excedrine migraine I am not sure how to replace but I keep looking!

Comment by ohnonotme on September 3, 2019 at 5:41pm

Hi 2Dachsunds,

I appreciate your comment as I was also wondering if that ingredient was the culprit after I saw a journal article that showed the presence of titanium dioxide in the hair shaft of FFA patients. I looked at my skincare products and numerous ones contained it, including my daily foundation. In fact I could not find any liquid foundation in the drugstore that did not contain that ingredient. So I might order one online (that is very expensive) to get a foundation without titanium dioxide. I too stopped applying sunblock near my hairline (I am a sunblock nut). I hoping this will cause the FFA to go into remission. The weird thing is I have not had any of the redness or itchiness of the scalp that others have mentioned. Just started losing hair. I also have not lost any eyebrow hair or any body hair. Just at the hairline.

Comment by PamW San Diego, CA, USA on September 3, 2019 at 3:29pm

I have a shampoo/conditioner recommendation that I believe has reduced my scalp discomfort:  Free and Clear Shampoo by Pharmaceuticals Specialties.  It can be purchased on Amazon has no added fragrance or harmful chemicals.  It is also gentle on my hair.  They have a styling gel too, which is chemical free.  

Comment by 2Dachshunds on September 3, 2019 at 3:06pm

Another ingredient that has been linked to FFA which was discussed here earlier is titanium dioxide.  Titanium Dioxide is in many things including sunscreen, facial moisturizers, makeup, sparkle cream, bronzer, and many otc and prescription drugs.  Do not put any sunscreen above your eyebrows and wear a hat - that was the suggestion and I am taking it.  I have scrutinized all of my lotions, pills, makeup etc and have thrown a bunch out. I do not use any chemical SPF. I use zinc oxide for sunscreen.

I started acupuncture for autoimmune. My scalp is calmer with less itching.  I hope that not using any product with titanium dioxide will help.

Comment by mc on August 6, 2019 at 11:25am

Hi

I was told by my dermatologist at Mass General to use only mineral sunscreen with zinc.  This summer I have used Aveno Mineral as that is what she recommended.  She also suggested Vanicream line for cleaning and moisturizing.

Since I gave up using any product with chemical SPF and fragrance it seems I'm in remission but what I've lost is gone sadly.  I may look into transplant if FFA is truly done.  So depressing.  Head bands, Toppix, and Joan Rivers Good Hair Day are my friends!  Also until I had my brows done I used a product called Wonder Brow Gel, it is great! 

My dermatologist has a strong hunch FFA may be caused by the use of chemicals in our skin products.  I would love to know what we all have in common to have FFA.

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