Comment

Comment by Beez on August 23, 2017 at 8:40am

Annie May- no not at all, no increase in shedding when I started Minoxidil. Not sure where that idea comes from....I have not ever read that as a side effect of Minoxidil in anything I have come across.it doesn't make sense to me why that would happen, either. Anyone have the answer to that?

Comment by Jacqui on August 23, 2017 at 4:50am

Just needed to vent. After much consideration I went to a different hairdresser that specialises in hair loss. I just wanted  a new cut to help hide my thinning hair. She just wanted to sell me a topper. Thank goodness my derm said this might be the case as another client came along to see her with a wig that she thought didn't need it. I was so disheartened. I am not there yet. I probably will get there but not yet. I was bummed that she didn't listen as it was a big thing for me to go to someone new and put my FFA out there.  Anyway, the topper was amazing so that's good I guess. Back to my old hairdresser today, she is sweet but has no idea really. I have sort of bangs which will do me for a while...... ok feel better now talking to others that get it!

Comment by AnnieMay on August 23, 2017 at 12:27am

Hi Beez  Did you experience some hairloss at first when using minoxidil? Worried about losing any more hair. . .

Comment by Beez on August 23, 2017 at 12:23am

I use the minoxidil over the entire top of my head, hairline to crown

Comment by AnnieMay on August 23, 2017 at 12:06am

Hi JRT, I'm so sorry you've been diagnosed with FFA. I was overwhelmed (still am) but so thankful I found this amazing courageous group. I haven't started the "strict" diet yet but I'm planning on starting after Labor Day. 

I still color my hair but I'm so conflicted as to whether to continue? It's one of the things that helps me feel better about myself so? I just got my eyebrows microbladed and it has helped me so much. 

I feel like I've been having more overall thinning and texture changes so I'm curious about your experiences with minoxidil. Are you applying it over your entire scalp or just the receding hairline area? And I've heard there is some shedding the first couple of weeks?

I'm also confused about topical steroids. The sharp tingling scalp sensations are driving me crazy but I don't know if it's the steroids or FFA. What do you all use to help that sharp pinpoint tingling sensation? 

Illusr8r- I don't have the red dent but my left temple area is red. No idea why? It would be easier to move forward with my life if there wasn't always something reminding us of the awful disease

Comment by Beez on August 22, 2017 at 11:14pm

Christi Q- I still color and blow dry my hair. I thought coloring might be part of the equation but others here say they have never colored their hair.

Halfbaked- I too am having some success with Minoxidil. Have been using 5% liquid minoxidil once daily since April. No longer losing handfuls of hair with each shampoo and the frontal recession seems to have slowed or stopped. I do not see new growth in the scarred areas but definitely some growth elsewhere.

As for diagnosis, despite my classic symptoms my derm biopsies me early on. It confirmed FFA/LPP?

Comment by NatalieW on August 22, 2017 at 4:38pm

Hi JRT,sorry to hear you've been diagnosed. I am gluten free and eat a low inflammatory diet. My frontal scalp is not as irritated and red, but my hair loss has continued unfortunately despite being less inflamed. Good luck

Comment by Christi Q. on August 22, 2017 at 4:34pm

Does anyone still color the hair they have left?

Comment by Christi Q. on August 22, 2017 at 4:34pm

Why did you have to stop straightening and blow drying your hair?

Comment by Halfbakedwho on August 22, 2017 at 4:08pm

Hi everyone, haven't posted for a bit. I am feeling VERY very lucky - the Minoxydyl (spelling?) and cortisone cream seem to be WORKING. I have new hair growth in the areas that were all white, around my temples! I didn't expect this at all (I wasn't expecting much of anything really). I have to make another appointment to go back in October to the dermatologist. I told you all that I also had to stop straightening and blow drying my hair, so it looks like a mop these days. There are worse things, but my hair and scalp were really unhappy being straight (lol). I look the same as I did when I was 10 or so with a 51 year-old face. Anyway I hope this will continue, I have been on our famous terribly-long vacation for 5 weeks, so when I go back to work now I hope the stress won't burn my hair off again. Take care all. 

• ‹ Previous
• 1
• …
• 140
• 141
• 142
• 143
• 144
• …
• 507
• Next ›
• Page