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Comment by Claire Julia on February 19, 2017 at 1:56pm

Well I have had my hair done now and been for the first wash. I have to say it is taking a little while to get used to it. Everyone says it looks good but I feel a little self conscious. I am sure I will get used to it.

Comment by Sad in chicago on February 19, 2017 at 7:45am

I have been wearing toppers for three years now.  It is a learning process.  I would recommend getting one now, as even tho you may feel there are some days that are OK, there are many others that are not, and wearing the topper helps enormously with confidence.  Why have any days that you don't feel well about yourself?  Having said that, here is my story.  I started with a small human hair piece that clipped in only and blended with my cut.  Loved it, and wore it for almost two years until it became apparent that my loss was increasing.  First we added a tape to the front where the hairline was receding and for a while that worked, but eventually, needed to move on to another larger piece that had a larger skull cap and was created specifically to fit the loss.  Expensive?  Yes.  Each piece was about $900.  And in between I did get a synthetic for summer, outside, poolside, etc.  Don't wear it much, but have it for emergencies.  The thing about getting one sooner than later, is that as the loss increases, and unfortunately, it does, you want the addition of the newer pieces to be seamless to how you look now.  Only way to accomplish that is by starting with a purchase.  I do not "shave" or make space to glue anything on.  I use tape only for the front area and clip in the rest.  It requires maintenance, learning how to take care, wash and style the piece, fixing and replacing clips here and there, and buying tape, BUT if you find a reputable and helpful stylist who specializes in hair loss you will adjust and learn as you go along and they should be there to help you.

Also, I recently had my eyebrows tatooted "permenant make up" and am very happy with this decision.  

Comment by Minter on February 12, 2017 at 8:30pm

Ohhhhh I am very excited for you Claire Julia! Yes, please give a report, I'm sure all will go very well for you on Tuesday :-)

Comment by Claire Julia on February 12, 2017 at 3:05am

I'm getting the interlace system on Tuesday. Excited but also slightly anxious. Will report back.

Comment by Minter on February 11, 2017 at 7:38pm

Hi Bonneygirlm,  that is the dilemma with this FFA, how to hide the missing front hairline- toppers are great for the thinning on the top, if you do have thinning, but that doesn't solve the problem of the front. I am in the midst of looking at options, if you look at the thread Extensions yay or nay, maybe you'll find some info there to help you.  Some people can get tape in pieces for the hairline, I am looking into the intra lace system- in a couple of weeks I have the consultation and will report back on how it goes-

Comment by Bonneygirlrn on February 11, 2017 at 5:38pm

I have slowly progressing FFA, diagnosed around 5 years ago but started probably 7 years ago. I have tried different haircuts to hide the loss of my hairline and luckily I had a low hairline to start. Now I'm at the point where I need to get a hairpiece or extensions of some kind. So hard when it's the front of your hair, how can it look natural?

Comment by Michaela on January 22, 2017 at 7:30am

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Comment by Lo on January 4, 2017 at 4:18pm

Hi, Celia and group.  I definitely appreciate the site - and the people.  It is clear that we are all "in this" together, and having that sense of community is priceless.  Celia - may I ask if you have always taken the holistic approach - and how has that helped with your overall hair loss?  Are you still able to "wear" your own hair?  I, too, started losing mine in 2010-2011.

Comment by Celia on January 4, 2017 at 3:58pm

Hi Pam , hope you had a good festive time. Will have a get together THIS YEAR. It's nice to be back on the forum but I stopped checking a long time ago as I felt coping without was in a way better. So glad that this way of communicating has helped to support so many people. There is now such a lot of useful info here perhaps the derms should log on and really search for clues documented in posts regarding FFA. In order to A .....find the trigger and B ....find a cure. In the meantime, we should all find ways of making us feel good about ourselves, eyebrow enhancements, hairpieces etc. In my opinion, I would avoid meds and go for a holistic way of treating the condition. Good food, sensible lifestyle and vitamins... for those of you who are relatively new to this site, I was diagnosed in 2011, after a serious bout of pneumonia involving lots of anti-biotics and chest x rays.

Celia  

Comment by Pam on January 1, 2017 at 3:01pm

Happy New Year to everyone ! Lets hope 2017 is a good one. Glad to have you back online Celia - your group has been a great support to so many of us. Pam.

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