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Comment by Claire Julia on December 17, 2016 at 2:37am

Hi Celia, good to have you back. I also have been off this forum as my email was hacked. Anyway just thought I would let you know,and Liz that I'm going to Lucinda
Ellery on Tuesday. Feel excited but also very nervous. Thanks Debbie for the inspiration as well. Claire.

Comment by Ana_Brazil on December 16, 2016 at 4:52pm

Hi!

I just came back from my visit to my dermatologist, to share some of my experience with some doctors from California.

The result is, they all agree the treatment that I am following is the standard for FFA at the moment. I am taking hydroxychloroquine sulfate + Dutasteride + Rogain foam + hormone replacement sine I am on menopause. I have been on the program for about 5 month, not very diligently with all my travels, but I heard good news. I was examine and we also look over the previous images and it looks that I have more volume of hair in the frontal area, not where I lost hair, but just beyond that. I could feel the difference, but it was good to have the confirmation.

We also think I might have more hair in the frontal portion where I lost hair, we saw very minimum increase but there was an increase in hair. The sides are the same.

Just wanted to share!

Thank you!

Ana

Comment by Celia on December 16, 2016 at 1:43pm

Hello Minter, I am glad you have found the group helpful. I think just knowing you are not alone is important for a start. I am not on any medication and honestly, my commitment to taking pills was never that strong when I considered the possible side effects.

I read that Belinda Hayle who created my eyebrows is no longer working, I was sorry to hear that she is not well. If anyone in Uk near London can recommend someone, I would be very grateful. Thanks !

Comment by Minter on December 16, 2016 at 7:57am

Hi Celia, first off I want to say thank you so much for starting this group! It has been a lifesaver with trying to deal with FFA. Glad you are able to be post again and yes, your photo in Dubai is still visible :-)

Comment by Celia on December 14, 2016 at 4:01pm

Hello all. I am Celia and I started this group in 2012. I haven't been able to post for a while as my access to the site became blocked. I have much to catch up on !

I presume you all see the picture of me at the top taken when I lived in Dubai. There are very few ladies who still write here, Liz being one of them. I hope I do not get blocked again !

Comment by Airam-FFA on December 13, 2016 at 2:21am

Thank you CurlyK for sharing this information. Does anyone know where we can get this service in the UK?
xOx

Comment by CurlyK on December 12, 2016 at 8:31pm

I first noticed my hair loss about four years ago when I was 43. It slowly kept receding and thinning on top. (I wish we could have a private photo area cause I would gladly share my photos with sisters who have the same condition.) I never specifically measured how far it receded but I would guess at least 2 inches behind my normal hair line and around my ears. Ive lost my eyebrows (getting them tattooed Monday!) And most of the hair on my arms and legs. It thinned on top pretty bad back to the crown. So the "cap" part of my hair piece does create a new hair line in front and goes back to just cover the crown area. I now have a head full of curly hair!

Comment by Lo on December 12, 2016 at 3:01pm

CurlyK, so this piece actually replaces your hairline?  I've lost about 2 inches from above/around my ears... and a bit less at temples/top hairline... how much (and where) had you lost prior to taking this route with the bonded piece?  Thanks for your help.

Comment by CurlyK on December 11, 2016 at 9:02pm

Isabel, I got my hair piece at Custom Hair Tampa Bay (Florida). They have 3 locations. They made a mold of my head and matched my natural hair color and natural curl. 10 weeks later I had a piece that was custom made for my scalp. They shaved the top part of my scalp and glued the hair piece to it. I go to them every five weeks when they remove it, clean off the glue, scrub my scalp and then glue the piece back on. They keep my own hair trimmed as it continues to grow. It's extremely secure and I sleep in it, shower in it, swim in it etc. With my work schedule and busy life, this was the best option for me.

Comment by Isabel on December 11, 2016 at 12:13pm

Hi CurlyK! I'm very happy for you!!!

Like you, I also have curly hair. I can still hide my AFF, but I'd like to know what type of solution you found to your situation. Is it something like Lucinda Ellery's in London? Can you post a link to the company where you got it?

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