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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 602
Latest Activity: Jul 14
Discussion Forum
CARF Conference 2018 Notes
Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Botox and FFA
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Trying a new approach with CBD oil...
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Man with FFA. New member.
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Comment Wall
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Comment by Minter on December 4, 2016 at 7:36am
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CurlyK, your happiness with your hair is bursting through in your post, what an awesome day for you! :-)
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Hi Liz,
Thanks, I will contact her.
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How did I miss that! Thanks for pointing me in the right direction.
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Check out the current Carf newsletter for an article on Mini Hair Pieces (can be used for sideburns) www.carfintl.org
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A couple of posters have said that they order hair and then cut it into sideburns. I am looking for details on how they go about this. Where do you order it from, what do you ask for and how did you determine how to cut it to match the missing hairline. It would be great to have a private photoshare area to do some "show and tell". As we are all so far flung in this big world. I have had extensions around the sides which has helped some but doesn't help with those missing sideburns. So happy for those of you who have found your solutions!
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Comment by Liz on December 3, 2016 at 4:47pm
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Hi Norfolk Girl
If you can get to Richmond I recommend Sara Woolhead. I had mine eyebrows tattooed there and I love them xx
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Comment by Brenda, IL US on December 2, 2016 at 8:26pm
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Thank you to Bu, Minter, and CurlyK. Best decision I've made in this 6 year journey. CurlyK I'm so happy for you. It's amazing how uplifting a compliment can be.
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Comment by CurlyK on December 2, 2016 at 1:16pm
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Brenda - sorry I'm late in responding but congrats on your new beautiful hair! I have to share a story from this morning...
I had to pick up someone from a surgical center this morning. When I checked at the front desk to pick the person up, the lady at the desk said "Wow! I LOVE your HAIR!" I smiled and said thank you. She then said "Is it natural?" which took me by surprise for a sec thinking she meant 'is it my own hair'...then I realized she was talking about the natural curl. :) I said, "Absolutely - all natural curls!" It made me feel so good inside!
So...said patient was hungry so we went to get breakfast. An older gentleman and his wife were behind us in line and he piped up and said "I really like your hair. It's fantastic!" I was like, wow, and this guy is standing there with his wife - awkward! BUT again I smiled and said 'thank you so much!'.
Yesterday, a faculty member and I passed in the hall and he said "I really like what you've done with your hair."
I felt like this was God's way of hugging me today. I haven't been complimented on my hair in at least a decade. I've been in hiding for four years since the receding and hair loss started. Today, my confidence is way up because now I'm not constantly thinking "whose looking at my hair?" and "can they see how bald I am?" or worrying about every little breeze that blows by.
For me, getting a bonded hair piece was the BEST decision I've made in regards to my FFA. I'm so grateful!!!
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Hi, this message is regarding eyebrow tattooing and is really of my fellow UK sufferers. I had eyebrow tattoos done by Belinda Hayle two years ago and they are brilliant. I had them 'topped up' last year and have just finally got through to Belinda (after several fruitless attempts which included leaving messages. Anyway she has apparently stopped doing tattooing as the result of illness. Obviously this is unfortunate for her but I am somewhat miffed that they did not bother to contact existing customers who have a medical reason for having these tot tools done. She has some people she has trained up that she says are good but I just wondered if anyone in the U.K. Can recommend anyone else, particularly in either the south east or East Angelia.
Thanks everyone.
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I went to Kincaids in Terre Haute, IN. It's on 3rd St. I'm traveling and don't have their #. I'm as giddy as a kid in a candy store. People keep saying that I look 10 years younger.
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