Comment

Comment by sallylwess on September 30, 2016 at 1:00pm

MnM, I had a topper made specifically to cover the frontal area of my hair line.  I also only found toppers that only provided hair at the crown, that is why I came up with the idea of designing one the followed my pattern of loss.  I had a pattern made for the base, then the topper was made specifically for me.  I have also taken old wigs and cut them into the pattern to cover my loss.  I used to clip in the topper, but now, due to more hair loss, I tape the topper in place.

Comment by MnM on September 30, 2016 at 12:56pm

Sad in Chicago do you mind telling me where you went for the custom topper? I went to World Hair Inst for a consult, but I don't think I can get back and forth downtown every month for the maintenance on their integrated system.

Comment by Sad in chicago on September 30, 2016 at 12:52pm

Correct MnM.  Most of the time it is Ok and I have learned to make the toppers a little longer at the sides for protection and coverage, but it does still become an issue.  I have a new "piece" on order that takes three months to make.  They take a mold of your front part of your head which includes around your ears and once made it is supposed to simulate a hairline.  I am waiting anxiously for it.  I guess you tape it all around your hairline including in front of your ears.  It sort of looks like a flap.  Stay tuned.....................

Comment by MnM on September 30, 2016 at 12:11pm

Question for those with toppers, does your topper cover the hair loss at your temples or just give you more hair on top that you then use to hide the loss at the temples? All the toppers I have seen just provide hair at the crown, it looks like you'd still have the loss at the temples on a windy day.

Comment by Minter on September 30, 2016 at 8:16am

She (the dermo.) prescribed 200mg to be taken 1x per day- as I understood it, it normally is 200mg 2x's per day? Irregardless, even if it was half the dose, it would still mean half of the nausea and stomach upset, which is still half of too much that I would want to deal with every day!  Luckily I didn't get anymore itchiness or shedding, maybe that would have been the next symptoms- ugh, even more reason for me not to take it :-/

Comment by Minter on September 26, 2016 at 7:33pm

I wish I could help you Ana_Brazil :-( but I am in New York state

As for me, I am here to complain, AGAIN! I have been taking Plaquenil since Thursday (it is only Monday today) and it is making me feel so nauseous, like very sick to my stomach and all it involves & I am only taking 200mg 1x per day- I have tried taking it at night, in the morning, with food, without food and always feel ill afterwards.  So I am going to stop taking this too, after having to stop minocycline last month because the side effects from that also hit me so badly.  

I don't understand why I am getting every side effect there is lately, it is very frustrating.  I am going to finish off the Clobetasol (no side effects from that, luckily) then I go back to the dermo. next week to figure out my next step, which I think as of now is to stop the medications completely, I will speak with the doctor and see what she says. 

Comment by Ana_Brazil on September 19, 2016 at 11:15am

Hi!
Can someone recommend an experienced Doctor in San Francisco, please?

Comment by CurlyK on September 16, 2016 at 1:47pm

Thank you all for your kind thoughts. Jen, I was also thankful for my curls that enabled me to hide my alopecia as long as I did. At least I could tease them up and over the receding hairline and cover my scalp with toppik. I'm glad not to have to use that any more as it was always all over my bathroom!

Comment by Anne Louise on September 16, 2016 at 1:28pm

CurlyK I am so sorry for your loss of your Dad. I was taken aback at the depth of my grief. He was 89 and lived a long full life, a peaceful death with all of us present...but I still wish I had another 89 years with him. It's been three months since he passed and now I'm not crying every day, so I guess that's an improvement. I will keep you in my thoughts and prayers.

Comment by Jen on September 16, 2016 at 10:56am

CurlyK,

My condolences to you and your family. Today (11.45am) marks 5 years since my husband died of cancer, so we share a sad day together. I have curly hair also. Very curly (actually 3/4 inch coils).  I always hated my uncontrollable curls but they have come in quite useful since FFA. FFA started in November following his passing.  I usually put some dark eyeshadow over the spots and along the missing hairline then I pull the damp curls forward into position over the bald parts.  I am sure that people who know me well realize that something looks different but they cannot quite figure out what is.

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